Community Forum icon

Forums

The best place to talk with other special needs families, get advice and support, buy and sell products and get followers for your campaign.

Which therapy?
 

the monkey puzzler

Avatar
Joined: 2014-10-14 Posts: 32
PM

Hi. We’ve been doing Brainwave with our little boy for past couple of years. Just wondering if anyone has suggestions for other UK based therapy programmes dealing with physical development in terms of Physio to encourage movement, communication skills and helping with sensory issues?

Thanks

18 October 2014 12:59 PM # 1

Waggytale

Avatar
Joined: 2014-10-18 Posts: 8
PM

If your child has cerebral palsy we have found the Bobath centre to be absolutely fantastic. Luckily our local health board pays for a course once a year although I understand it’s a bit of a postcode lottery. They can advise your local team of ots, physios and speech therapists of specialist goals and methods designed for your child. And they are always at the end of the phone for any new issues that arise.
We tried Bibic (similar to brainwave, I think) but expensive and very labour intensive. We just couldn’t find an extra hour a day to do the programme, what with school, nebulisers, standing frame, chest percussion, physio, long feeding times and early bedime. I may be good but I’m not superhuman! But their programme seemed very comprehensive and specific to my daughter.
We also take her to conductive education weekly. Luckily we live near a centre that provides it for free, although we try to raise money for them regularly.

18 October 2014 05:37 PM # 2

munam

Avatar
Joined: 2014-10-17 Posts: 33
PM

Could you give me more information about Bibic please?  We are taking my 3 year old grand daughter to the Bobath Centre next month for four weeks.  We live overseas, in the Middle East where very little help is available for our little angel.  I have heard a lot of good feedback about the Bibath centre and when I was in the UK last month went along to pay the money and met some of the staff who were so kind and friendly.  I’m really excited about our sessions next month there.  The smallest improvement is a milestone and gives us the encouragement to search for other centers and therapies.  We have to pay the costs ourselves being non residents of the UK (although I paid my NI contributions for many many years and our grand daughter is also a British citizen along with my daughter but when it’s your own no price tag can be put on their care.  Good luck to everyone

20 October 2014 11:45 AM # 3

the monkey puzzler

Avatar
Joined: 2014-10-14 Posts: 32
PM

Thanks for the updates - will have a look at both. Our big issue with Brainwave is time also - very labour intensive. Is the Bobath centre an NHS initiative?

02 November 2014 08:15 AM # 4

sbain

Avatar
Joined: 2014-11-02 Posts: 8
PM

We do brainwave and as you say it can be a challenge to fit in. We’re just about to start conductive education - just had the initial assessment. It seems as if it will be great in terms of gross motor skills. Transitional movement is particularly tricky for my little man and they will be focusing on that.

05 February 2015 07:53 PM # 5

Julie

Avatar
Joined: 2014-10-10 Posts: 38
PM

We also go to brainwave and do really like it, we like the fact you get a whole day to go through everything with a physiotherapist and having a set program helps me to achieve more during the day, but we also go to the movement centre in Oswestry. This is NHS funded in some areas ( not ours:( ) but it provides targeted training in a standing frame. The idea is by giving the child just enough control in the right area the.n they are able to target a small area of their trunk and strengthen it a bit at time. You can have an initial assessment where they will discuss with you if they feel it will help your child before you decide to go ahead.  You then go every 8 weeks for a re assessment and adjustments to the frame. We have seen great improvements to head control and upper trunk strength. Again though you have to do at least 30 mins everyday in the standing frame doing exersizes which can be hard to achieve every day.
I am really interested to hear about therapys other people use and have seen results from.

Register to Post a Reply