Christmas with Autism

Christmas time, a season of roasted chestnuts as you walk down the high street, a…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Five things I’ve learned about epilepsy since my son’s diagnosis

1. Not all seizures are the same Prior to my son’s epilepsy diagnosis, I’d…

Default avatar

by Emma Murphy
on

Topics

View All Autism Children with Disabilities Occasions Advice & Support Children with Disabilities Epilepsy Children with Disabilities Autism Family & Disabilities Children with Disabilities Family & Disabilities Rare Diseases Campaigns Children with Disabilities Space to Change Cerebral Palsy Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Spina Bifida Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Epilepsy Children with Disabilities Family Family & Disabilities Advice & Support Casual Fitness Advice & Support Children with Disabilities Family & Disabilities Advice & Support Spina Bifida Parent’s Stories Parent’s Stories Advice & Support Family & Disabilities Advice & Support Cerebral Palsy Parent’s Stories Children with Disabilities Epilepsy Family & Disabilities Children with Disabilities Family Spina Bifida Advice & Support Children with Disabilities Diet Advice & Support Children with Disabilities Parent’s Stories Holiday Occasions Family & Disabilities Children with Disabilities Family & Kids Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories Children with Disabilities Epilepsy Parent’s Stories Children with Disabilities Family & Disabilities Family & Kids Advice & Support Children with Disabilities Family & Disabilities Autism Children with Disabilities Family & Disabilities Autism Learning Disability Parent’s Stories Awareness Days Children with Disabilities Parent’s Stories Children with Disabilities Cerebral Palsy Parent’s Stories Awareness Days Campaigns Children with Disabilities Advice & Support Children with Disabilities Parent’s Stories Children with Disabilities Epilepsy Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Autism Children with Disabilities Parent’s Stories Autism Awareness Days Parent’s Stories Advice & Support Children with Disabilities Family & Disabilities Autism Family & Disabilities Parent’s Stories Awareness Days Epilepsy Autism Children with Disabilities Parent’s Stories Autism Children with Disabilities Undiagnosed Conditions Advice & Support Awareness Days Parent’s Stories Cerebral Palsy Children with Disabilities Parent’s Stories Children with Disabilities Epilepsy Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories Campaigns GoToShop Cerebral Palsy Family & Disabilities Parent’s Stories Advice & Support Disabilities Space to Change Advice & Support Children with Disabilities Parent’s Stories Advice & Support Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Cerebral Palsy Advice & Support Autism Family & Disabilities Autism Children with Disabilities Occasions Autism Family & Disabilities Occasions Autism Learning Disability Occasions Campaigns Children with Disabilities Space to Change Advice & Support Children with Disabilities Family & Disabilities Advice & Support Family & Disabilities Rare Chromosome Disorder Family & Disabilities Occasions Spina Bifida Cakes & Baking Family & Kids Sensory Processing Disorder Awareness Days Family Children with Disabilities Parent’s Stories Spina Bifida Advice & Support Children with Disabilities Undiagnosed Conditions Advice & Support Children with Disabilities Parent’s Stories Advice & Support Down’s Syndrome Family & Disabilities Awareness Days Children with Disabilities Spina Bifida Advice & Support Family & Disabilities Learning Disability Awareness Days Advice & Support Parent’s Stories Awareness Days Children with Disabilities Parent’s Stories Family Diet Healthy Eating Autism Family & Kids Parent’s Stories Advice & Support Children with Disabilities Spina Bifida Advice & Support Awareness Days Parent’s Stories Casual Family Healthy Eating Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Parent’s Stories Autism Children with Disabilities Parent’s Stories Children with Disabilities Parent’s Stories Spina Bifida Awareness Days Cerebral Palsy Campaigns Cerebral Palsy Awareness Days Family & Disabilities Children with Disabilities Family & Disabilities Spina Bifida Autism Children with Disabilities Learning Disability Cerebral Palsy Children with Disabilities Family & Disabilities Campaigns Children with Disabilities Family & Disabilities Family Parent’s Stories Advice & Support Cerebral Palsy Children with Disabilities Casual Family & Disabilities Family & Kids Advice & Support Children with Disabilities Parent’s Stories Cerebral Palsy Children with Disabilities Family & Disabilities Advice & Support Cerebral Palsy Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Autism Advice & Support Learning Disability Advice & Support Casual Children with Disabilities Campaigns Children with Disabilities Disabilities Space to Change Casual Diet Family Cerebral Palsy Children with Disabilities Parent’s Stories

Special Needs

Tough Times to get to Green Pastures

We moved into our current home 2 and a half years ago and absolutely loved it. It…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Special Needs: Undiagnosed is disabled

“what’s wrong with your baby?” “I don’t know”…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Special Needs Families: Autumn is coming

The summer holidays have ended which can only mean one thing, the season is changing…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Education Education Education

Once upon a time, a long, long time ago (oh OK in the ‘70s) non uniform wearing…

Jane Scott's avatar

by Jane Scott
on

Special Needs

Things my daughter has taught me: Special Needs Parenting

11 months old and my daughter has taught me more than I have learnt in my life.

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Special Needs Parenting: You can never research too much

We have started to consider booking up activities for the summer holidays and have…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Isolated but Finally Finding my Feet

When I had my first three babies, I had a group of mummies who I met up with weekly,…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

6 Years

Six years ago today at 37 weeks pregnant I was in the antenatal clinic for my final…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

The First Year of my Journey as a Special Needs Parent

This time last year I was pregnant with my 4th child, we had just started the long…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Walking a Knife Edge

Never sure how to start posts like this one, it always seems so trite. 

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

When Even the Specialists Don’t Know

Most days Sam’s status as a child who is undiagnosed just doesn’t bother…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

Woods and Trees

So, I may well have waxed lyrical about how it doesn’t actually matter to me…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

The Day I Discovered SWAN UK

My son was just 21 months when we had our first appointment with a geneticist back…

Claire Smyth's avatar

by Claire Smyth
on

Special Needs

Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Podcast

Podcast - The 3 People I Always Meet When I’m Out With My Disabled Child

In this episode of the Firefly Community Podcast Anna narrates one of our popular…

Firefly Community's avatar

by Firefly Community
on

Special Needs

To have another child… or not?

There is a topic that crops up frequently on the special needs groups and while it…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

U is for Unique

We all like to think we are a unique don’t we? A bit special, destined for…

Sam Bowen's avatar

by Sam Bowen
on

Special Needs

Are you planning number two?

Zachariah is now 2 years old, and the questions of whether we will have any more…

Rochelle Followes's avatar

by Rochelle Followes
on

Special Needs

G is for .... Genetics

If it wasn’t for a ‘faulty’ or ‘quirky’ set of genes…

Sam Bowen's avatar

by Sam Bowen
on

Special Needs

What I’ve learnt as a SWAN parent

The 4th Undiagnosed Children’s Awareness Day takes place on Friday April 29th.…

Complicated Gorgeousness's avatar

by Complicated Gorgeousness
on

Special Needs

5 things I didn’t know about Undiagnosed Genetic Conditions…

…before I had a child with an undiagnosed genetic condition. My son Daniel…

Claire Smyth's avatar

by Claire Smyth
on

Special Needs

Raising Kids with Special Needs: Learning not to compare

​C was definitely one letter that conjured up a lot of words for me…

Sam Bowen's avatar

by Sam Bowen
on

Special Needs

What ifs, what onlys and the 10 things that make me happy!

​There is no getting away from the fact that being a carer is damn hard. …

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

By a Special Needs Dad: Unanswered Questions, What Ifs and Escaping the Void

Last year, as Father’s Day approached, I jotted down some thoughts about my…

Firefly Community's avatar

by Firefly Community
on

Special Needs

Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

The Naughty Step

When you have a child that is delayed, has reduced mobility and doesn’t show…

Complicated Gorgeousness's avatar

by Complicated Gorgeousness
on

Special Needs

The heartbreak of not having a definitive diagnosis

Before reading on, I want you to look at this photo and tell me if it’s a sad…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

Undiagnosed Awareness Day

*waves* Hello? Helllllooooo? Over here! Life is full of Awareness Days. All trying…

As Alex Grows Up's avatar

by As Alex Grows Up
on

Special Needs

My daughter’s label has fallen off

I am an accidental expert at choosing items in a shop that are missing their sticker.…

One of the Wonders's avatar

by One of the Wonders
on