What can carers do about stress?

Being a carer and parent to a child can have a huge impact on your health.

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by Ann Hickman
on

Finding Physical Activities Your Child Loves

Do you ever find it tough to choosing the right physical activities for your child…

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by Rebecca Toal
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Special Needs

Undiagnosed Children’s Day

I am a bit of a plant geek.

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by Jane Scott
on

Special Needs

Bohring-Opitz Awareness Day

Talynn Gurganus was born at 35 weeks on January 27, 2014.

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by Guest Bloggers
on

Special Needs

When Every Day is Rare Disease Day

Officially, a disease is classed as rare if it affects fewer than 1 in 2,000 people. 

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by Guest Bloggers
on

Special Needs

Rare Diseases Aren’t That Rare

It’s funny how one day a year we are supposed to shout from the rooftops about…

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by Ger Smyth
on

Special Needs

One in a Million

This month we are celebrating Rare Disease Day.

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by Rebecca Shayler-Adams
on

Special Needs

Waiting Room Woes

I could feel the blood rushing to my head. I knew I was the center of attention,…

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by Ger Smyth
on

Special Needs

National Young Carers Day

He drops his bag by the sitting room door. I ask how his day was. I generally get…

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by Ger Smyth
on

Special Needs

In with the Old and Out with the New

It’s the other way around for most people but we are not most people.

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by Ger Smyth
on

Special Needs

Milestones

There are many milestones we picture once we have children. 

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by Ger Smyth
on

Special Needs

Special Needs Parenting: I Never Thought

I have been thinking lately about a few of things I had thought after I gave birth…

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by Ger Smyth
on

Special Needs

Dear Teacher

I know you are doing a wonderful job. My child goes to school happy most days and…

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by Miriam Gwynne
on

Special Needs

Comfee Seat

We started the process months ago.We talked about it.

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by Ger Smyth
on

Special Needs

The Electric Wheelchair

We’ve had it for almost two years now. At first it was daunting; going out…

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by Ger Smyth
on

Special Needs

Rare Disease and the Dangers of “Dr Google”

It’s very daunting when a member of your family is diagnosed with a rare disease,…

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by Jodie Eaton
on

Special Needs

Why Meryl Streep’s Acceptance Speech Spoke to Me

Five minutes after the crowd in The Beverly Hilton ended their standing ovation,…

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by taleS froM the trencheS
on

Special Needs

What I learnt in 2016

Dear 2016, 

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by Ger Smyth
on

Special Needs

New rule - No Comparing: Special Needs Parenting

I vividly remember a conversation I had with a friend when our son started physical…

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by Melissa Schlemmer
on

Special Needs

D is for…Diagnosis: Special Needs Parenting

I have a snap shot memory. 

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by Sam Bowen
on

Special Needs

Children’s Hospice - Another world

“It’s OK Mum” I whisper, “She’s real” but even…

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by Sam Bowen
on

Special Needs

Smith-Magenis Syndrome United Kingdom Conference

At the St. Johns Hotel in Solihull, preparations are being made for the 2015 Smith-Magenis…

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by taleS froM the trencheS
on

Special Needs

Rare conditions are an all-too-common story

I stepped out of the paediatric intensive care unit for a breath of fresh air.

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by Erika Fässler-Nelson
on

Special Needs

Noah’s Rare Disease Story

You could be forgiven for thinking ‘Why us?’ if your child is diagnosed…

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by Firefly Community
on

Special Needs

No Longer Alone:  Finding Another SMS Family

My husband, Charlie searched through his wallet and pulled out our son’s kindergarten…

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by taleS froM the trencheS
on

Special Needs

Angelman Syndrome - Logan’s Story

To help raise awareness of Angelman Syndrome, The Angelman Syndrome Foundation has…

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by Firefly Community
on

Special Needs

When People Do Not Believe the Diagnosis

I promised myself I wouldn’t be like them. Those moms with a chip on their…

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by taleS froM the trencheS
on

Special Needs

World Smith-Magenis Syndrome Day

Our journey with Smith Magenis Syndrome “Don’t wipe your hands on the…

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by taleS froM the trencheS
on