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Until Sam was born I didn’t really know about children’s hospices; I…
by Carolyn Voisey on 21st May, 2018
This is the key to a day out together for my son and me.
by The Odd Sock Diary on 18th May, 2018
When my daughter was born in 2015, I knew my world would never be the same. …
by Guest Bloggers on 27th February, 2018
rare ADJECTIVE (of an event, situation, or condition) not occurring very often.
by Emma Murphy on 27th February, 2018
Once upon a time we were drifting through our happy, ‘typical’ lives,…
by Emily Sutton on 25th October, 2017
Becoming a parent of a child with a disability has been a steep learning curve.
by Nadine Caring in the Chaos on 31st July, 2017
When my husband and I attended our first PRISMS (Parents and Researchers Interested…
by taleS froM the trencheS on 21st July, 2015
Dear Smith-Magenis Syndrome, the first time I heard the phrase SMS, a little cartoon…
by taleS froM the trencheS on 9th July, 2015
I stepped out of the paediatric intensive care unit for a breath of fresh air.
by Erika Fässler-Nelson on 16th March, 2015