Rare Diseases Aren’t That Rare

It’s funny how one day a year we are supposed to shout from the rooftops about…

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by Ger Smyth
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Why I will Continue to Use the Term Special Needs

I have a son with extraordinary needs, special needs.

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by Melissa Schlemmer
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View All Awareness Days Children with Disabilities Rare Diseases Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Awareness Days Rare Diseases Advice & Support Children with Disabilities Family & Disabilities Advice & Support Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Family & Kids Advice & Support Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Family & Kids Advice & Support Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Parent’s Stories Spina Bifida Autism Family & Disabilities Family & Kids Children with Disabilities Family & Disabilities Parent’s Stories Family & Disabilities Occasions Parent’s Stories Epilepsy Family & Disabilities Occasions Advice & Support Children with Disabilities Rare Diseases 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Special Needs

S is for Sleep

“Sssshhh she’s just dropped off to sleep” ... says my husband to…

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by Sam Bowen
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Special Needs

Is my little boy becoming a toddler or is medication changing him?

When Zachariah first came home he was what others would say ‘as good as gold’…

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by Rochelle Followes
on

Special Needs

Special Needs Parenting: The Truth Hurts

​So this week I’ve had the unenviable task of keeping a detailed diary for…

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by Carolyn Voisey
on

A letter to my friends: Yes, he has changed, but he’s still the same boy.

Quite recently, my son had a seizure. A seizure that completely threw us out of our…

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by Emmy Heaton
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Special Needs

Special Needs Parenting: When you’re stopped in your tracks

I know I’m not alone when I say that there are moments when a simple comment…

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by Carolyn Voisey
on

Special Needs

Special Needs Parenting: Things ain’t all bad

​A tricky week in our household has just been survived – little man hasn’t…

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by Carolyn Voisey
on

Special Needs

Special Needs Daily Battles

​When life is just, well, MEH.

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by Carolyn Voisey
on

Special Needs

Therapy Pets: Service Dogs

​​This month life has become considerably more chaotic with the arrival of a…

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by Carolyn Voisey
on

Special Needs

Dangerous and Annoying Epilepsy Misconceptions

It's hard to believe in this Age of Information that there could still be so…

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by Faith, Hope and Love
on

Special Needs

Charlotte’s Web: Medical Marijuana

When I began pleading with people to join me in the fight for my daughter, Bethany’s…

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by Faith, Hope and Love
on

Special Needs

Epilepsy - The medication juggling act

In many ways, having a child with special needs is no different to having a typical…

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by Carolyn Voisey
on

Special Needs

When time stops still for a moment

There are four words which, when said together, never cease to make me see red and…

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by Carolyn Voisey
on

Special Needs

Epilepsy is…

I wrote the following words for Purple Day, the International day for raising awareness…

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by All bound for Lou Lou Land
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Special Needs

I worry therefore I am?

I’ve never had an ordinary child so I can’t say if I’d worry less,…

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by Purely Lora
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Special Needs

Grieving the loss of normality

I’ve struggled with this post for several days now. It’s very raw still…

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by Carolyn Voisey
on

Special Needs

Life, according to Sam

So, where do I begin? While writing this, one of my favourite pieces of music came…

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by Carolyn Voisey
on

Special Needs

Sebastian’s Journey with Epilepsy

Sebastian is six and a half years old. When we were living in Cairo he was first…

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by Free as trees
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Special Needs

800 seizures a day: Epilepsy, our story

My daughter, May, was born with a severe brain injury. She had seizures every day,…

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by Mama Lewis
on

Special Needs

Epilepsy: The Forest Fire

Shauneen is mum to Aaron and Adam. Aaron is 9 and Adam is 3.  Today’s…

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by Firefly Community
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Special Needs

Epilepsy: The Sneak

Our story begins when Thomas was 9 days old. He was born 6 weeks early and everything…

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by Minding Thomas
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Special Needs

Epilepsy: The Jigsaw Destroyer

Today’s post on Epilepsy comes from guest blogger, Dawn Cameron. Dawn is mum…

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by Firefly Community
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Special Needs

Epilepsy Series - Number 1

​In this, the first of our Epilepsy Awareness series, we are sharing a post from…

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by Firefly Community
on

Special Needs

November: Epilepsy Awareness Month

​The month of November represents different things to different people; it is the…

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by Firefly Community
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