Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

Rare Diseases Aren’t That Rare

It’s funny how one day a year we are supposed to shout from the rooftops about…

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by Ger Smyth
on

Why I will Continue to Use the Term Special Needs

I have a son with extraordinary needs, special needs.

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by Melissa Schlemmer
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Topics

View All Awareness Days Children with Disabilities Rare Diseases Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Awareness Days Rare Diseases Advice & Support Children with Disabilities Family & Disabilities Advice & Support Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Family & Kids Advice & Support Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Family & Kids Advice & Support Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Parent’s Stories Spina Bifida Autism Family & Disabilities Family & Kids Children with Disabilities Family & Disabilities Parent’s Stories Family & Disabilities Occasions Parent’s Stories Epilepsy Family & Disabilities Occasions Advice & Support Children with Disabilities Rare Diseases Advice & Support Children with Disabilities Family & Disabilities Advice & Support Autism Family & Kids Advice & Support Autism Family & Disabilities Advice & Support Family & Disabilities Spina Bifida Children with Disabilities Epilepsy Family & Kids Children with Disabilities Family & Kids Spina Bifida Advice & Support Children with Disabilities Family & Kids Children with Disabilities Parent’s Stories Scooot Advice & Support Family & Disabilities Parent’s Stories Advice & Support Family & Disabilities Parent’s Stories Advice & Support Cerebral Palsy Family & Disabilities Advice & Support Children with Disabilities Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Family & Disabilities Advice & Support Family & Disabilities Rare Diseases Advice & Support Children with Disabilities Parent’s Stories Casual Family & Disabilities Parent’s Stories Cerebral Palsy Family & Disabilities Parent’s Stories Awareness Days Children with Disabilities Cerebral Palsy Advice & Support Campaigns Space to Change Advice & Support Autism Learning Disability Advice & Support Children with Disabilities Family & Disabilities Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Undiagnosed Conditions Advice & Support Children with Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Parent’s Stories Advice & Support Children with Disabilities Rare Diseases Advice & Support Children with Disabilities Products Autism Learning Disability Parent’s Stories Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Learning Disability Advice & Support Casual Family & Disabilities Children with Disabilities Family & Disabilities Undiagnosed Conditions Autism Children with Disabilities Family & Kids Children with Disabilities Family & Disabilities Spina Bifida Autism Children with Disabilities Family & Disabilities Cerebral Palsy Family & Disabilities Family & Kids Advice & Support Children with Disabilities Parent’s Stories Family & Disabilities Parent’s Stories Spina Bifida Advice & Support Autism Learning Disability Autism Family & Disabilities Undiagnosed Conditions Autism Advice & Support Family & Disabilities Advice & Support Children with Disabilities Family & Disabilities Children with Disabilities Parent’s Stories Undiagnosed Conditions Autism Children with Disabilities Parent’s Stories Advice & Support Autism Parent’s Stories Autism Family & Kids Special Needs Holidays Advice & Support Disabilities Parent’s Stories Family & Kids Parent’s Stories Autism Advice & Support Children with Disabilities Parent’s Stories Space to Change Parent’s Stories Family & Disabilities Advice & Support Autism Children with Disabilities Advice & Support Children with Disabilities Parent’s Stories Family & Kids Fun Children with Disabilities Children with Disabilities Family & Disabilities Learning Disability Casual Children with Disabilities Family & Kids Children with Disabilities Epilepsy Family & Kids Advice & Support Family & Kids Parent’s Stories Cerebral Palsy Children with Disabilities Family & Disabilities Autism Children with Disabilities Occasions Advice & Support Children with Disabilities Epilepsy Children with Disabilities Autism Family & Disabilities Children with Disabilities Family & Disabilities Rare Diseases Campaigns Children with Disabilities Space to Change Cerebral Palsy Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Spina Bifida Advice & Support Family & Disabilities Parent’s Stories Children with Disabilities Family & Disabilities Epilepsy Children with Disabilities Family Family & Disabilities Advice & Support Children with Disabilities Family & Disabilities Advice & Support Spina Bifida Parent’s Stories Parent’s Stories Advice & Support Family & Disabilities Advice & Support Cerebral Palsy Parent’s Stories Children with Disabilities Epilepsy Family & Disabilities Children with Disabilities Family Spina Bifida Advice & Support Children with Disabilities Diet Advice & Support Children with Disabilities Parent’s Stories Holiday Occasions Family & Disabilities Children with Disabilities Family & Kids Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories Advice & Support Children with Disabilities Parent’s Stories

Special Needs

It’s Okay to Mourn

My daughter is now 17 months and I have only just accepted that it is ok to mourn.

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by Rebecca Shayler-Adams
on

Special Needs

Happy and Healthy Baby

As a parent all you want is for your child to be happy and healthy.

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by Rebecca Shayler-Adams
on

Special Needs

Special Needs Family Resolutions

I realised that I have never had a New Year’s Resolution. 

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by Rebecca Shayler-Adams
on

Special Needs

Special Needs New Year’s

As a new year approaches I look back at 2017 and think WOW. 

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by Rebecca Shayler-Adams
on

Special Needs

Tough Times to get to Green Pastures

We moved into our current home 2 and a half years ago and absolutely loved it. It…

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by Rebecca Shayler-Adams
on

Special Needs

Special Needs: Undiagnosed is disabled

“what’s wrong with your baby?” “I don’t know”…

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by Rebecca Shayler-Adams
on

Special Needs

Special Needs Families: Autumn is coming

The summer holidays have ended which can only mean one thing, the season is changing…

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by Rebecca Shayler-Adams
on

Special Needs

Education Education Education

Once upon a time, a long, long time ago (oh OK in the ‘70s) non uniform wearing…

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by Jane Scott
on

Special Needs

Things my daughter has taught me: Special Needs Parenting

11 months old and my daughter has taught me more than I have learnt in my life.

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by Rebecca Shayler-Adams
on

Special Needs

Special Needs Parenting: You can never research too much

We have started to consider booking up activities for the summer holidays and have…

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by Rebecca Shayler-Adams
on

Special Needs

Isolated but Finally Finding my Feet

When I had my first three babies, I had a group of mummies who I met up with weekly,…

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by Rebecca Shayler-Adams
on

Special Needs

6 Years

Six years ago today at 37 weeks pregnant I was in the antenatal clinic for my final…

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by Carolyn Voisey
on

Special Needs

The First Year of my Journey as a Special Needs Parent

This time last year I was pregnant with my 4th child, we had just started the long…

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by Rebecca Shayler-Adams
on

Special Needs

Walking a Knife Edge

Never sure how to start posts like this one, it always seems so trite. 

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by Carolyn Voisey
on

Special Needs

When Even the Specialists Don’t Know

Most days Sam’s status as a child who is undiagnosed just doesn’t bother…

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by Carolyn Voisey
on

Special Needs

Woods and Trees

So, I may well have waxed lyrical about how it doesn’t actually matter to me…

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by Carolyn Voisey
on

Special Needs

The Day I Discovered SWAN UK

My son was just 21 months when we had our first appointment with a geneticist back…

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by Claire Smyth
on

Special Needs

Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

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by Carolyn Voisey
on

Special Needs

To have another child… or not?

There is a topic that crops up frequently on the special needs groups and while it…

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by Carolyn Voisey
on

Special Needs

U is for Unique

We all like to think we are a unique don’t we? A bit special, destined for…

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by Sam Bowen
on

Special Needs

Are you planning number two?

Zachariah is now 2 years old, and the questions of whether we will have any more…

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by Rochelle Followes
on

Special Needs

G is for .... Genetics

If it wasn’t for a ‘faulty’ or ‘quirky’ set of genes…

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by Sam Bowen
on

Special Needs

What I’ve learnt as a SWAN parent

The 4th Undiagnosed Children’s Awareness Day takes place on Friday April 29th.…

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by Complicated Gorgeousness
on

Special Needs

5 things I didn’t know about Undiagnosed Genetic Conditions…

…before I had a child with an undiagnosed genetic condition. My son Daniel…

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by Claire Smyth
on

Special Needs

Raising Kids with Special Needs: Learning not to compare

​C was definitely one letter that conjured up a lot of words for me…

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by Sam Bowen
on

Special Needs

What ifs, what onlys and the 10 things that make me happy!

​There is no getting away from the fact that being a carer is damn hard. …

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by Carolyn Voisey
on

Special Needs

By a Special Needs Dad: Unanswered Questions, What Ifs and Escaping the Void

Last year, as Father’s Day approached, I jotted down some thoughts about my…

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by Firefly Community
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Special Needs

Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

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by Carolyn Voisey
on

Special Needs

The Naughty Step

When you have a child that is delayed, has reduced mobility and doesn’t show…

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by Complicated Gorgeousness
on