Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

The Sideline Mom

We all may see it all too often... The struggling mom on the sideline

Brittney Baumgartner's avatar

by Brittney Baumgartner
on

Special Needs Parenting: Why is she Doing This??

"Why is she doing this?"; A question I have found myself asking since Amy…

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by Ceri-Ann Brown
on

Topics

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Special Needs

Isolated but Finally Finding my Feet

When I had my first three babies, I had a group of mummies who I met up with weekly,…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

6 Years

Six years ago today at 37 weeks pregnant I was in the antenatal clinic for my final…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

The First Year of my Journey as a Special Needs Parent

This time last year I was pregnant with my 4th child, we had just started the long…

Rebecca Shayler-Adams's avatar

by Rebecca Shayler-Adams
on

Special Needs

Walking a Knife Edge

Never sure how to start posts like this one, it always seems so trite. 

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

When Even the Specialists Don’t Know

Most days Sam’s status as a child who is undiagnosed just doesn’t bother…

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by Carolyn Voisey
on

Special Needs

Woods and Trees

So, I may well have waxed lyrical about how it doesn’t actually matter to me…

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by Carolyn Voisey
on

Special Needs

The Day I Discovered SWAN UK

My son was just 21 months when we had our first appointment with a geneticist back…

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by Claire Smyth
on

Special Needs

Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

To have another child… or not?

There is a topic that crops up frequently on the special needs groups and while it…

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by Carolyn Voisey
on

Special Needs

U is for Unique

We all like to think we are a unique don’t we? A bit special, destined for…

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by Sam Bowen
on

Special Needs

Are you planning number two?

Zachariah is now 2 years old, and the questions of whether we will have any more…

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by Rochelle Followes
on

Special Needs

G is for .... Genetics

If it wasn’t for a ‘faulty’ or ‘quirky’ set of genes…

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by Sam Bowen
on

Special Needs

What I’ve learnt as a SWAN parent

The 4th Undiagnosed Children’s Awareness Day takes place on Friday April 29th.…

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by Complicated Gorgeousness
on

Special Needs

5 things I didn’t know about Undiagnosed Genetic Conditions…

…before I had a child with an undiagnosed genetic condition. My son Daniel…

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by Claire Smyth
on

Special Needs

Raising Kids with Special Needs: Learning not to compare

​C was definitely one letter that conjured up a lot of words for me…

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by Sam Bowen
on

Special Needs

What ifs, what onlys and the 10 things that make me happy!

​There is no getting away from the fact that being a carer is damn hard. …

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by Carolyn Voisey
on

Special Needs

By a Special Needs Dad: Unanswered Questions, What Ifs and Escaping the Void

Last year, as Father’s Day approached, I jotted down some thoughts about my…

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by Firefly Community
on

Special Needs

Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

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by Carolyn Voisey
on

Special Needs

The Naughty Step

When you have a child that is delayed, has reduced mobility and doesn’t show…

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by Complicated Gorgeousness
on

Special Needs

The heartbreak of not having a definitive diagnosis

Before reading on, I want you to look at this photo and tell me if it’s a sad…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Special Needs

Undiagnosed Awareness Day

*waves* Hello? Helllllooooo? Over here! Life is full of Awareness Days. All trying…

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by As Alex Grows Up
on

Special Needs

My daughter’s label has fallen off

I am an accidental expert at choosing items in a shop that are missing their sticker.…

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by One of the Wonders
on

Special Needs

Disabilities and Illnesses With No Name

Your child is presenting with a set of odd symptoms, or features that are interfering…

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by Faith, Hope and Love
on

Special Needs

Every day is Undiagnosed Day in our house

Remember when the postman used to deliver mail early in the morning? Well, these…

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by All bound for Lou Lou Land
on

Special Needs

A new little brother

Four year old Twinkle is our first born. She most definitely didn’t come with…

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by The Inclusive Home
on

Special Needs

Genetics

We adopted Afua 18 months ago without knowing much about her past. Her medical record…

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by Joyful Journey Mom
on

Special Needs

Searching for Answers

After a short stint in the neo-natal unit due to being born with pneumonia, Hugh…

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by Little Mama Murphy
on

Special Needs

Starting school - not so scary after all

One of the huge moments in any child’s life is the day you start school. 

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by As Alex Grows Up
on

Special Needs

Undiagnosed Event - Northern Ireland

Today, the Firefly Garden attended SWAN UK’s Undiagnosed Event in Northern…

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by Firefly Community
on