Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

Beauty and Cruelty: Sharing Bad News with the Special Needs Child

Nearly thirty years ago, Manchester welcomed this Southerner with open arms.

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by Jane Scott
on

Teamwork

Do you sometimes think that everything is up to you?  That if you don’t…

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by Mark Arnold
on

Topics

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Special Needs

When Even the Specialists Don’t Know

Most days Sam’s status as a child who is undiagnosed just doesn’t bother…

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by Carolyn Voisey
on

Special Needs

Woods and Trees

So, I may well have waxed lyrical about how it doesn’t actually matter to me…

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by Carolyn Voisey
on

Special Needs

The Day I Discovered SWAN UK

My son was just 21 months when we had our first appointment with a geneticist back…

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by Claire Smyth
on

Special Needs

Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

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by Carolyn Voisey
on

Special Needs

To have another child… or not?

There is a topic that crops up frequently on the special needs groups and while it…

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by Carolyn Voisey
on

Special Needs

U is for Unique

We all like to think we are a unique don’t we? A bit special, destined for…

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by Sam Bowen
on

Special Needs

Are you planning number two?

Zachariah is now 2 years old, and the questions of whether we will have any more…

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by Rochelle Followes
on

Special Needs

G is for .... Genetics

If it wasn’t for a ‘faulty’ or ‘quirky’ set of genes…

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by Sam Bowen
on

Special Needs

What I’ve learnt as a SWAN parent

The 4th Undiagnosed Children’s Awareness Day takes place on Friday April 29th.…

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by Complicated Gorgeousness
on

Special Needs

5 things I didn’t know about Undiagnosed Genetic Conditions…

…before I had a child with an undiagnosed genetic condition. My son Daniel…

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by Claire Smyth
on

Special Needs

Raising Kids with Special Needs: Learning not to compare

​C was definitely one letter that conjured up a lot of words for me…

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by Sam Bowen
on

Special Needs

By a Special Needs Dad: Unanswered Questions, What Ifs and Escaping the Void

Last year, as Father’s Day approached, I jotted down some thoughts about my…

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by Firefly Community
on

Special Needs

Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

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by Carolyn Voisey
on

Special Needs

The Naughty Step

When you have a child that is delayed, has reduced mobility and doesn’t show…

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by Complicated Gorgeousness
on

Special Needs

The heartbreak of not having a definitive diagnosis

Before reading on, I want you to look at this photo and tell me if it’s a sad…

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by Carolyn Voisey
on

Special Needs

Undiagnosed Awareness Day

*waves* Hello? Helllllooooo? Over here! Life is full of Awareness Days. All trying…

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by As Alex Grows Up
on

Special Needs

My daughter’s label has fallen off

I am an accidental expert at choosing items in a shop that are missing their sticker.…

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by One of the Wonders
on

Special Needs

Disabilities and Illnesses With No Name

Your child is presenting with a set of odd symptoms, or features that are interfering…

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by Faith, Hope and Love
on

Special Needs

Every day is Undiagnosed Day in our house

Remember when the postman used to deliver mail early in the morning? Well, these…

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by All bound for Lou Lou Land
on

Special Needs

A new little brother

Four year old Twinkle is our first born. She most definitely didn’t come with…

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by The Inclusive Home
on

Special Needs

Genetics

We adopted Afua 18 months ago without knowing much about her past. Her medical record…

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by Joyful Journey Mom
on

Special Needs

Searching for Answers

After a short stint in the neo-natal unit due to being born with pneumonia, Hugh…

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by Little Mama Murphy
on

Special Needs

Starting school - not so scary after all

One of the huge moments in any child’s life is the day you start school. 

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by As Alex Grows Up
on

Special Needs

Undiagnosed Event - Northern Ireland

Today, the Firefly Garden attended SWAN UK’s Undiagnosed Event in Northern…

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by Firefly Community
on