A place for special needs families to meet, talk and break down life's barriers
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Real life stories, issues and experiences of day to day life by parents and healthcare professionals.
by Claire Smyth on 27th April, 2017
Our son is four years old and nonverbal. He does not speak, but he has a lot to say.
by Melissa Schlemmer on 27th April, 2017
It’s very daunting when a member of your family is diagnosed with a rare disease,…
by Jodie Eaton on 24th February, 2017
Five minutes after the crowd in The Beverly Hilton ended their standing ovation,…
by taleS froM the trencheS on 10th January, 2017
by Ger Smyth on 9th January, 2017
I vividly remember a conversation I had with a friend when our son started physical…
by Melissa Schlemmer on 5th December, 2016
by Firefly Community on 10th May, 2016
I have a snap shot memory.
by Sam Bowen on 3rd February, 2016
“It’s OK Mum” I whisper, “She’s real” but even…
by Sam Bowen on 31st August, 2015
At the St. Johns Hotel in Solihull, preparations are being made for the 2015 Smith-Magenis…
by taleS froM the trencheS on 26th April, 2015
I stepped out of the paediatric intensive care unit for a breath of fresh air.
by Erika Fässler-Nelson on 16th March, 2015
You could be forgiven for thinking ‘Why us?’ if your child is diagnosed…
by Firefly Community on 27th February, 2015
My husband, Charlie searched through his wallet and pulled out our son’s kindergarten…
by taleS froM the trencheS on 21st February, 2015
To help raise awareness of Angelman Syndrome, The Angelman Syndrome Foundation has…
by Firefly Community on 15th February, 2015
I promised myself I wouldn’t be like them. Those moms with a chip on their…
by taleS froM the trencheS on 8th February, 2015
Our journey with Smith Magenis Syndrome “Don’t wipe your hands on the…
by taleS froM the trencheS on 17th November, 2014