Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

My Non-Verbal Son Can Communicate

Our son is four years old and nonverbal. He does not speak, but he has a lot to say.

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by Melissa Schlemmer
on

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Special Needs

Rare Disease and the Dangers of “Dr Google”

It’s very daunting when a member of your family is diagnosed with a rare disease,…

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by Jodie Eaton
on

Special Needs

Why Meryl Streep’s Acceptance Speech Spoke to Me

Five minutes after the crowd in The Beverly Hilton ended their standing ovation,…

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by taleS froM the trencheS
on

Special Needs

What I learnt in 2016

Dear 2016, 

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by Ger Smyth
on

Special Needs

New rule - No Comparing: Special Needs Parenting

I vividly remember a conversation I had with a friend when our son started physical…

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by Melissa Schlemmer
on

Special Needs

D is for…Diagnosis: Special Needs Parenting

I have a snap shot memory. 

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by Sam Bowen
on

Special Needs

Children’s Hospice - Another world

“It’s OK Mum” I whisper, “She’s real” but even…

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by Sam Bowen
on

Special Needs

Smith-Magenis Syndrome United Kingdom Conference

At the St. Johns Hotel in Solihull, preparations are being made for the 2015 Smith-Magenis…

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by taleS froM the trencheS
on

Special Needs

Rare conditions are an all-too-common story

I stepped out of the paediatric intensive care unit for a breath of fresh air.

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by Erika Fässler-Nelson
on

Special Needs

Noah’s Rare Disease Story

You could be forgiven for thinking ‘Why us?’ if your child is diagnosed…

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by Firefly Community
on

Special Needs

No Longer Alone:  Finding Another SMS Family

My husband, Charlie searched through his wallet and pulled out our son’s kindergarten…

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by taleS froM the trencheS
on

Special Needs

Angelman Syndrome - Logan’s Story

To help raise awareness of Angelman Syndrome, The Angelman Syndrome Foundation has…

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by Firefly Community
on

Special Needs

When People Do Not Believe the Diagnosis

I promised myself I wouldn’t be like them. Those moms with a chip on their…

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by taleS froM the trencheS
on

Special Needs

World Smith-Magenis Syndrome Day

Our journey with Smith Magenis Syndrome “Don’t wipe your hands on the…

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by taleS froM the trencheS
on