Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

The Power of a Hug

'If you could go anywhere in the world to do a good deed for someone, where would…

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by Sally Mitcham
on

Holidays are Hard

There is no shame is admitting summer holidays are hard.

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by Miriam Gwynne
on

Topics

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Special Needs

Walking a Knife Edge

Never sure how to start posts like this one, it always seems so trite. 

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by Carolyn Voisey
on

Special Needs

Surprising me Every Day

Being punched in the nose, having your cheeks wiped with saliva hands and all the…

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by Rochelle Followes
on

Special Needs

Sometimes I Just Wish they Would Listen to Me

One thing that I have never had to worry about when it comes to Zachariah’s…

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by Rochelle Followes
on

Special Needs

Wedding Bells

Over a year ago my Brother and his Fiancé gave Zachariah the lovely task of…

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by Rochelle Followes
on

Special Needs

What is it like to parent a child with epilepsy?

Epilepsy is a condition estimated to affect more than 500,000 people in the UK, including…

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by Laura Rutherford
on

Special Needs

Find the Ability in the Disability

I was recently approached by someone who told me they were praying for Zachariah,…

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by Rochelle Followes
on

Special Needs

Epilepsy - Seize the Moment

Let me just start here by saying seizures SUCK.

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by Emmy Heaton
on

Special Needs

Epilepsy Doesn’t Care

Epilepsy doesn’t care that you have planned a lovely day out. Epilepsy doesn’t…

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by Rochelle Followes
on

Special Needs

Special Needs Parenting: Giving thanks to the monitor

There are some days when the tiredness still pulls me up short. 

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by Carolyn Voisey
on

Special Needs

Epilepsy and St Valentine’s Day

Do you think that St. Valentine’s Day is just one of an increasing number of…

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by The Odd Sock Diary
on

Special Needs

How a Trip to the Carousel Taught this Special Needs Mom a Profound Life Lesson

My 18 year old daughter, Bethany has quite a few special needs, all stemming from…

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by Faith, Hope and Love
on

Special Needs

Through the Lens

Sebastian has epilepsy due to the damage caused to his brain at birth. 

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by Kara Melissa
on

Special Needs, International Blogs

November is National Epilepsy Awareness Month (USA)

You may have noticed the purple ribbon symbolising epilepsy awareness on Firefly’s…

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by Rebecca Toal
on

Special Needs

When the smallest change makes the biggest difference

One of the most difficult, soul destroying, stressful parts of having a child with…

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by Carolyn Voisey
on

Special Needs

Dear Seizures, I Hate You

You are an uninvited guest that always shows up unexpectedly.  When our lives…

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by Jodi Shenal
on

Special Needs

The Outsider

I have never really considered myself a social butterfly.  Smaller groups of…

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by Jodi Shenal
on

Special Needs

S is for Sleep

“Sssshhh she’s just dropped off to sleep” ... says my husband to…

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by Sam Bowen
on

Special Needs

Is my little boy becoming a toddler or is medication changing him?

When Zachariah first came home he was what others would say ‘as good as gold’…

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by Rochelle Followes
on

Special Needs

Special Needs Parenting: The Truth Hurts

​So this week I’ve had the unenviable task of keeping a detailed diary for…

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by Carolyn Voisey
on

Special Needs

Special Needs Parenting: When you’re stopped in your tracks

I know I’m not alone when I say that there are moments when a simple comment…

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by Carolyn Voisey
on

Special Needs

Special Needs Parenting: Things ain’t all bad

​A tricky week in our household has just been survived – little man hasn’t…

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by Carolyn Voisey
on

Special Needs

Special Needs Daily Battles

​When life is just, well, MEH.

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by Carolyn Voisey
on

Special Needs

Therapy Pets: Service Dogs

​​This month life has become considerably more chaotic with the arrival of a…

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by Carolyn Voisey
on

Special Needs

Dangerous and Annoying Epilepsy Misconceptions

It's hard to believe in this Age of Information that there could still be so…

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by Faith, Hope and Love
on

Special Needs

Charlotte’s Web: Medical Marijuana

When I began pleading with people to join me in the fight for my daughter, Bethany’s…

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by Faith, Hope and Love
on

Special Needs

Epilepsy - The medication juggling act

In many ways, having a child with special needs is no different to having a typical…

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by Carolyn Voisey
on

Special Needs

When time stops still for a moment

There are four words which, when said together, never cease to make me see red and…

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by Carolyn Voisey
on

Special Needs

Epilepsy is…

I wrote the following words for Purple Day, the International day for raising awareness…

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by All bound for Lou Lou Land
on

Special Needs

I worry therefore I am?

I’ve never had an ordinary child so I can’t say if I’d worry less,…

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by Purely Lora
on

Special Needs

Grieving the loss of normality

I’ve struggled with this post for several days now. It’s very raw still…

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by Carolyn Voisey
on