Special Needs

Special Needs

Real life stories, issues and experiences of day to day life by parents and healthcare professionals.

Accessible Summer Festival in Bury, North England

Consider this a public service announcement from Firefly!

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by Firefly Community
on

It is Summer

Yep; for most parents they relish the lack of routine, the lack of having to get…

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by Ger Smyth
on

Topics

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Special Needs

Will she Always Have that Tube?

If I had a £1 for every time I was asked that question.

Ceri-Ann Brown's avatar

by Ceri-Ann Brown
on

Special Needs

Lunch Date with a Tubie

In a rare twist of fate, on a day when I actually had a decent time for lunch Sam…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Food, Special Needs

“Please just one bite” - Introducing new foods

I remember back to when my son was about 18 months old and he suddenly stopping eating…

Zowie Kaye's avatar

by Zowie Kaye
on

Food, Special Needs

The wonderful benefits of blending

Since Sam had his PEG fitted a year ago, he has come a looong way.  From being…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Food, Special Needs

Holidaying… with a tubie

I am really quite excited… in a just a few weeks we’re off on our holidays!…

Carolyn Voisey's avatar

by Carolyn Voisey
on

Food, Special Needs

Tube vs Food: are we making the right decision?

From day one getting food down my son has not been an easy task. I remember in detail…

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by Rochelle Followes
on

Special Needs

The blended diet

For those who don’t have a super tubie like Sam in their lives, the blended…

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by Carolyn Voisey
on

Special Needs

Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

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by Carolyn Voisey
on

Special Needs

Grieving the loss of normality

I’ve struggled with this post for several days now. It’s very raw still…

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by Carolyn Voisey
on

Special Needs

Cut these 5 things from the diet of kids with special needs

One of the biggest mistakes I see when it comes to parents incorporating nutrition…

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by Malorie Blake (MS, RDN, LDN)
on

Food, Special Needs

Egg, Diary and Gluten Free Pancake Recipe

Today is Shrove Tuesday, a day when families traditionally eat rich or fatter foods,…

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by Firefly Community
on

Special Needs

Blended Diet for Tube Fed Kids – Our Journey

If you had told me this time last year that I would be tube feeding my child 100%…

Ceri-Ann Brown's avatar

by Ceri-Ann Brown
on

Special Needs

Stop Freaking Out, It’s Just Her Feeding Tube - Raising Children with Special Needs

You may have seen us in the cafe, in the park, or in a restaurant. No matter the…

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by Erika Fässler-Nelson
on

Special Needs

When did this become so normal?

I had a bit of a moment today. Sat in Starbucks (again) #dontjudge I was feeding…

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by theaandnatesmam
on

Special Needs

Blended Diet – Giving everyone a choice about what they eat with a feeding tube

Cerys had a gingerbread biscuit today. She is two and really liked it. Our daughter…

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by Firefly Community
on