Real life stories, issues and experiences of day to day life by parents and healthcare professionals.
Let’s talk about boobs, shall we?
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by Firefly Community
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Looking back at where I was three years ago, I would have never known the joy and…
by Brittney Baumgartner
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I know you are doing a wonderful job. My child goes to school happy most days and…
by Miriam Gwynne
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Most days Sam’s status as a child who is undiagnosed just doesn’t bother…
by Carolyn Voisey
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We’ve had it for almost two years now. At first it was daunting; going out…
by Ger Smyth
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Yesterday evening, after I’d helped my son to shower and get ready for bed,…
by Mark Arnold
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As I fill my washing machine yet again with dirty laundry I am yet again reminded…
by Miriam Gwynne
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One thing that I have never had to worry about when it comes to Zachariah’s…
by Rochelle Followes
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We asked you, ‘What is the most positive or supportive thing anyone said to…
by Firefly Community
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Oliver is now three years old, and we have been blessed to only have follow up/ regular…
by Brittney Baumgartner
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When we are out and about, we’re often approached.
by Vicky Martin
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In the fall of 2014, when Isaiah was just over one year old, we began researching…
by Vicky Martin
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On Christmas Eve morning 2012, we stared at a little heart beating on an ultrasound…
by Vicky Martin
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April 11th, my little man Oliver celebrated his third birthday!
by Brittney Baumgartner
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Our son is four years old and nonverbal. He does not speak, but he has a lot to say.
by Melissa Schlemmer
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Over a year ago my Brother and his Fiancé gave Zachariah the lovely task of…
by Rochelle Followes
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Our son is diagnosed with global developmental delay.
by Melissa Schlemmer
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So, we have our meeting coming up with the Consultant to discuss Zachariah’s…
by Rochelle Followes
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It was our usual Saturday morning and ever since he had woken at 5:30am my non verbal…
by Miriam Gwynne
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Every time I contemplate having to travel by airline with my son's wheelchair…
by Stacy Warden
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I am acutely aware that not everyone has a Mum prepared to drop everything to help,…
by Carolyn Voisey
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I was recently approached by someone who told me they were praying for Zachariah,…
by Rochelle Followes
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Negative assumptions are something I have come to expect. Nevertheless I am still…
by The Odd Sock Diary
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I saw an advert a few months back asking Firefly followers to review the Eazyhold…
by Rochelle Followes
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I was recently approached by someone who told me they were praying for Zachariah,…
by Rochelle Followes
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It amazes me that of all places, pivotal, life affirming moments continue to find…
by Jodi Shenal
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He may look small, but his size does not set him back. He may look fragile, but his…
by Brittney Baumgartner
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Special Needs, International Blogs
Each year the Down’s syndrome community marks a global day of education, collaboration…
by Hayley Goleniowska
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I thought getting a diagnosis would be easy.
by Kate Swenson
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Epilepsy doesn’t care that you have planned a lovely day out. Epilepsy doesn’t…
by Rochelle Followes
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It's not a secret that you can't walk Although we truly believed you would
by Emily Sutton
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