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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

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Tina McGrevy lives in the Midwest with her husband Charlie and their three sons: Garrett diagnosed in 2001 with Smith-Magenis Syndrome (SMS), Patrick and Brennan. Tina serves on the Board of Directors for PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome), the international organization dedicated to education, awareness and research of SMS. She has been published in Chicken Soup for the Soul: All in the Family and New Moms, and numerous online publications. Tina’s dream is to follow in the footsteps of another Ohio Valley mom, Erma Bombeck, with humorous stories for the special needs community. Tina blogs about her adventures with three sons and the unexpected joys of Smith-Magenis Syndrome (SMS).

@TinaMcGrevy http://www.tinamcgrevy.blogspot.com

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Special Needs

Why Meryl Streep’s Acceptance Speech Spoke to Me

Five minutes after the crowd in The Beverly Hilton ended their standing ovation,…

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Smith-Magenis Syndrome Awareness Day

Jacqueline “Jackie” Huston, of Cape Girardeau, Missouri, was first in…

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Special Needs

The Zoo Mom Could Have Been Me

By now, everyone has heard of the tragic death of Harambe and certainly everyone…

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Special Needs

What a Mouse Taught Me about my Son with Special Needs

When my husband and I attended our first PRISMS (Parents and Researchers Interested…

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Special Needs

Special Needs Schooling: Tips for Transitioning Before and After School

Transitions have always been difficult for my son, Garrett, who was born with Smith-Magenis…

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Special Needs

Dear Smith-Magenis Syndrome

​Dear Smith-Magenis Syndrome, the first time I heard the phrase SMS, a little cartoon…

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Laundry Duty: The Message Our School Sends My Son and His Peers

My son Garrett was ready for high school thirty minutes early, so he sat in front…

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Special Needs

Smith-Magenis Syndrome United Kingdom Conference

At the St. Johns Hotel in Solihull, preparations are being made for the 2015 Smith-Magenis…

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Special Needs

Not Every Disability is Obvious

“Not every disability is obvious.” I wanted to wear that quote around…

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Special Needs

Keeping Friends After the Diagnosis

“SMS is not going to define our family.” That was our, okay my, mantra…

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Special Needs

Don’t Talk with Your Mouth Full!

“I wamp!” Garrett yelled out from his kitchen chair. Or, at least, he…

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Special Needs

Living with Homophones

Unless you live with a toddler, you do not realize just how confusing our English…

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Special Needs

Lesson from a Stranger

“Please. Sit down.” I pleaded with my husband, Charlie, but he continued…

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Special Needs

No Longer Alone:  Finding Another SMS Family

My husband, Charlie searched through his wallet and pulled out our son’s kindergarten…

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Special Needs

When People Do Not Believe the Diagnosis

I promised myself I wouldn’t be like them. Those moms with a chip on their…

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Special Needs

World Smith-Magenis Syndrome Day

Our journey with Smith Magenis Syndrome “Don’t wipe your hands on the…

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