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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Sarah Brisdion

I am Sarah. Mum to five-year-old twins, Erica and Hadley. They were born at 27 weeks gestation and as a result, Hadley has Cerebral Palsy - Spastic diplegia/quadriplegia (the doctors can’t quite decide) with low muscle tone in his trunk. This means that he cannot sit, crawl, stand or walk at all unaided and uses a wheelchair mostly. We live in the New Forest with the world’s fattest tabby cat. We are all doing our best.

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Special Needs

I’ve lost my 6 year old to a games console: Special Needs Parenting

I’m sure that many parents would be shocked (maybe even a bit disgusted) that…

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Special Needs Families: Why don’t you want us in your city?

Dear Winchester City Council, We visited your beautiful city last weekend...

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Preparing for Christmas

For most parents, that means spending more than you can afford on stuff you know…

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When things are put before people, that’s when I get upset

Despite knowing that the world is really not very accessible, on occasion,…

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“I don’t want to have Cerebral Palsy any more mum.”

These were the heart-breaking words my little boy said to me this morning. One day…

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A sporting chance

I used to sit worrying so much about how my little boy would feel during PE lessons…

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It’s ok to call in the Cavalry!

Sometimes you have to look after number one. Today is one of those days.…

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Should SEN parents be worried about how much screen time their children have?

As I type this, my son is playing on his Kindle and my daughter is playing Leapfrog…

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Why I took a photo of myself sat on the loo… and posted it on the internet!

I’m not an exhibitionist, in fact I’d say that I’m closer to prude,…

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I read the news today, oh boy!

I returned home one morning during the last week of term, after yet another down-pour…

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We were thrown together for a reason

A letter to my NICU mums. When we were planning our families we didn’t even…

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The magical powers of an orange wheelchair

We all wish we had superpowers. I wish I could just click my fingers and make things…

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Longdown Activity Farm Opens Accessible Changing Room

Having been approached by local campaigning mum Sarah Brisdion, Longdown Activity…

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Loo of the Year Awards 2015

Getting in front of the right people is so important when campaigning for change.…

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Check out my call for better toilet facilities on the BBC!

Today you'll find me on the BBC website campaigning for better toilet facilities.

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Special Needs Families: Society is just not accessible!

I’m on my soap box. And apologies for the rant. 

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Special Needs Parenting: School Worries

We have been dreading the start of big school for a long time and now it’s…

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My rant about Toilet and Changing Facilities!

​I should start by explaining that Hadley, my little guy, is almost five years…

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Special Needs Families: Our first holiday as a family of four.

 So, we did it. We went on holiday.

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Arsehole

Last week I called somebody an arsehole! Ok, so it wasn’t to their face. I…

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Why I hate my son’s disability

I hate my son’s disability. I would take it away in an instant. (I never really…

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The beginning of the Special Needs Journey

Of course not everyone goes through a traumatic pre-term birth, I know my views on…

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A light in a never-ending tunnel

I so often sit here thinking of things to write and more often than not, they are…

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Do we need to be cruel to be kind?

This is a question that I ask myself every day. And it’s a seriously tough…

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