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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Rochelle Followes

Mummy to a special boy with complex needs and visual impairment who treasures every single day.

https://www.facebook.com/MyDailyMiracle

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Special Needs

Accepting Spinal Surgery

It was quite a long time ago now that Zachariah was diagnosed with scoliosis (curved…

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Surprise Inbox

When you are contacted by another family who have a loved one with the same genetic…

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The highs and lows of an EHCP

We all know that parenting a child with complex needs comes with its fair share of…

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Fear of New Things

My biggest goal for Zachariah, aside from being healthy, has got to be inclusion…

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Juggling Motherhood and Grief

It’s been an extremely difficult few months in the Followes' residence. 

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Special Needs Parents: How do you do it?

I bet that every single one of you reading this has either said this statement or…

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Tube Feeding - One Year On

A friend of mine recently spoke to me about their concerns over the gastrostomy as…

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Epilepsy is Relentless

Before having Zachariah I’ll admit I had very little knowledge of the evil…

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Surprising me Every Day

Being punched in the nose, having your cheeks wiped with saliva hands and all the…

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Sometimes I Just Wish they Would Listen to Me

One thing that I have never had to worry about when it comes to Zachariah’s…

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Wedding Bells

Over a year ago my Brother and his Fiancé gave Zachariah the lovely task of…

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Is there ever a right time?

So, we have our meeting coming up with the Consultant to discuss Zachariah’s…

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Product Review: EazyHold Grips

I saw an advert a few months back asking Firefly followers to review the Eazyhold…

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Find the Ability in the Disability

I was recently approached by someone who told me they were praying for Zachariah,…

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Epilepsy Doesn’t Care

Epilepsy doesn’t care that you have planned a lovely day out. Epilepsy doesn’t…

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I Cannot See Your Child Today

I have always welcomed children into my home, and enjoyed their company, since Zachariah…

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Miracles

We all have this fairy tale view of what a miracle is, you know, the big event that…

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New Year New Me

Apologies upfront people! I will be talking very honestly about how I want to find…

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Vulnerability

Realising just how vulnerable my son really is and realising how much we need a suitable…

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Special Needs Parenting: Our new normal

Following on from my last blog about the day Zachariah had his Gastrostomy, I wanted…

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Special Needs Families: Coping with surgery

It has been a very strange few weeks! 

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What are your special needs frustrations?

You know those little things that should frustrate you but actually become part of…

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Special Needs Parenting: The balance between acceptance, hope and perseverance

When expecting a child you collect all these ideas, hopes and dreams. You picture…

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Diagnosis Day

Friday 7th October was the day Zachariah went from being a SWAN baby to a boy with…

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A trip to the hospital

Zachariah hasn’t been too well lately, as he awaits his gastrostomy and as…

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It’s the most magical time of the year!

As we enter into November and it gets colder and darker outside, we all start to…

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The T Word

Earlier this month I was watching the documentary about Down Syndrome with Sally…

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Nursery

In July I wrote a blog about Zachariah starting nursery and I shared how overwhelming…

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How Blogging has changed my life

I did OK at English in school and college but I would never have put myself down…

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Our first Children’s Hospice experience

We have recently looked around a Children’s Hospice and been offered 7 nights…

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