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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

One of the Wonders

I’m hoping this blog will give me greater insight into my journey as the mother of two beautiful girls, one of whom is “medically complex” and has special needs. Or at least, I hope that the act of writing down some of those rattling thoughts will stop them from distracting me.

http://oneofthewonders.wordpress.com/

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Special Needs

The Right to Education

Over the past few weeks, my social media has lit up with people worried about the…

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Special Needs Families: Love lift us up

Love lift us up, so the song goes. 

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Special Needs Parenting: It’s the law

In America it’s called Murphy’s law, in the UK it’s Sod’s…

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Agreeing to disagree: Parenting kids with special needs

For the most part, I love Miss Z’s doctors. I have worked hard over the years…

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Our first hospice visit

What is the first thing that the word “hospice” brings to your mind? 

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Superstition

I’m not a particularly superstitious person. I’m not afraid of black…

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Learning the Ukulele

When parents talk about the impact their child with special needs has had on their…

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Operation Cinema

Social media is bursting at the seams with parents of children with special needs…

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Special Needs

Boredom is good

For most of her life, Miss Z has wanted, craved and demanded predictability. She…

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Special Needs

Raising kids with special needs: I speak on her behalf

​My older daughter is not shy with her opinions. From a very early age, she made…

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Special Needs Parenting: Knowing when to let go!

​When Miss Z was little, I called her my marsupial baby – which was appropriate,…

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Raising kids with special needs: Should she go or should she stay?

​When I first learned that Miss Z had additional needs, I made a promise to myself.…

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Raising Kids with Special Needs: Our G-J tube journey

​Deciding whether or not your child should get a feeding tube can be an agonizing…

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The joy and sadness of special needs equipment

For the first three years of her life, Miss Z required very little in the way of…

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Special Needs Parenting: Are you lookin’ at me?

Special needs parents come in all shapes and sizes, but there is one thing that unites…

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Special Needs Parenting: Three years ago today

Facebook very kindly reminded me of a photo I’d posted three years ago today. …

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Special Needs Parenting: Inchstones

In special needs parenting, you learn pretty quickly to give up on the standard ‘milestones’…

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Special Needs

Special Needs Parenting: We need to talk…

​Our previous paediatrician (who sadly retired last year) had a rather dramatic…

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The Special Needs Work-Life Conundrum

​Once upon a time, before I had children, I loved my career. 

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Special Needs Parenting: Gratitude – when you least expect it

​We have been through the wringer during the past few weeks.

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The hospital of my dreams

Miss Z is back in hospital and it looks like it will be a lengthy admission.

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Special Needs Parenting: What is your child’s quality of life?

​Since learning that Miss Z’s recurrent lung problems are likely to be life…

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Sometimes it’s all too much: Special Needs Parenting

We have had a lot to deal with around here lately.  Miss Z is going on month…

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Speech Therapy: Communication – the hard, slow revolution

​We are starting a communication revolution here. And we couldn’t be more…

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Hospital stays: Grab it and go special needs style

Miss Z has a talent for the unexpected. You can plan and organize to your heart’s…

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Fun, not therapy

My daughter, Miss Z, has multiple disabilities.  She can’t sit independently,…

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Stockholm Syndrome

As the parent of a child with complex medical needs, I’ve spent a lot of time…

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My daughter’s label has fallen off

I am an accidental expert at choosing items in a shop that are missing their sticker.…

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Sleep – it’s a necessity, not just an option

When Miss Z was a baby, she was a terrible sleeper.  She rarely slept more than…

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Our DIY assistance dog

I obsess about things. They get stuck in my mind and I just can’t stop thinking…

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