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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Fiona Russo

I'm a busy mother of four, wife of one, and doctoral candidate to my ever-patient university colleagues. My passions in life are many, but there are never enough hours in the day!

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Special Needs

This Amazing Community

I’ve been a member of the Firefly community for a couple of years now. …

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Where are the age appropriate toys?

It can be very difficult to encourage Charlie to play with toys. She’s never…

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First words at five!

Charlie is a five-year-old girl with Rett Syndrome.  People with Rett are often…

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Controlling Behaviour

I’m not sure whether this is a special needs parenting issue, a mothering issue,…

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One Step Forward, Two Steps Back

Our daughter’s Rett syndrome is a constantly evolving beast.  In the first…

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Family Holidays

Our family recently went on our annual winter holiday.  We rent a lovely old…

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We’re showing our disabled daughter the World!

It's so important to us that Charlie is able to see and experience as much of…

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One giant leap for a child with special needs…

Last week, Charlie did this...

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Special Needs Families: The Christmas Aftermath

Christmas is a wonderful time of year.  Here in Australia, it coincides with…

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Why Special Needs Parents Make Good Employees

Normally, in this space, we focus almost completely on our special children. We…

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A Special Needs Christmas is Extra Special

There are a few things that are different this Christmas. One huge thing is that…

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My Daughter has never spoken to us, but there is new hope - Raising a Child with Special Needs

We have exciting news to share!! Charlie has never spoken to us – at least,…

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5 Ways I Depend on My Child with Special Needs

I was reading an article the other day about successful relationships.  The…

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Children are Too Honest Sometimes

Ever heard the saying, ‘out of the mouths of babes (oft time comes gems)’? 

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Three Cheers for the ‘Low-Maintenance’ Friends - Special Needs Parenting

I’ve seen a number of posts here lately about how to talk to people –…

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Here’s to Siblings of Children with Disabilities

I’d like to post a ‘thank you’ today.

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“Rettober” - Rett Syndrome Awareness Month

October is Rett Syndrome Awareness Month.  This has resulted in some great awareness…

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Why Special Needs Blogs Matter - Raising Children with Disabilties

I recently read a blog post by Carly Findlay at http://carlyfindlay.blogspot.com.au/. …

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When the ‘Experts’ Look to You for Advice - Raising Children with Disabilities

Charlie is still recovering from a recent illness that saw us admitted to the Children’s…

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Charlie’s First Steps! Raising Children with Disabilities

  We’ve been using the Upsee for over a year now.  Charlie…

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The Terrible, Horrible, No Good, Very Bad Lunch - Raising Children with Disabilities

  Charlie’s had a rough run, health-wise, over the last few weeks. …

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4 Stages of Parental Sex - And Why Having Kids with Disabilities May Keep You at Stage 1

As everyone knows, sex is an important part of a healthy relationship.  Sexual…

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A Rosy Future: Raising Children with Disabilities

If you read the literature about children with disabilities, there’s one thing…

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I’m Taking Over: Raising Children with Disabilities

GUEST BLOG!  I’ve been asking Michael for ages whether he has anything…

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“Actually, It’s a Wheelchair”

A few months ago, we bought Charlie’s first wheelchair. It’s designed…

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5 Ways to Support Newly Diagnosed Families

Followers of the wonderful Firefly blogs may know that our little Charlie was diagnosed…

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The Diagnosis Rollercoaster

On the way home from the hospital on D-Day, after dropping Daddy back at work, Charlie…

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So We Got Our Daughter’s Diagnosis…

Well, little Charlie Bear, light of my life, today your neurologist sat us down and…

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Special needs parenting: have we reached D- (diagnosis) Day?

We celebrated Charlie’s fourth birthday last week.   My little girl –…

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Special Needs Parenting: It’s Just One Bad Day

My friend has always loved affirmations.  Mantras, messages, reminders - those…

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