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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Carolyn Voisey

Slightly bonkers mum to a superhero. I live in the Midlands with my best friend and soulmate Jonathan, our son Sam and a menagerie of animals. Our lives are chaotic but full of laughter and fun as we learn about life and love through the eyes of a medically complex child

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Special Needs

In praise of the P-pod

Oh, how much do we love this piece of kit?!  For those who don’t know,…

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When family can’t or won’t help

We’ve been very lucky since Sam’s arrival - my parents have been incredibly…

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Pressure

I’m so scared of getting things wrong these days. Worrying about Sam’s…

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The joys of school transport

Really, how hard can it be to sort out school transport?!  Do other SEN families…

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That cringing moment when…

… you realise that you’ve forgotten an appointment. Again. Oh dear,…

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Together for short lives

When every moment counts, the constant fighting, medications, therapies and strain…

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Mothers, unite!

I can’t possibly be the only Mum who has noticed this; our children and families…

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Fear of Failing

Today things have all come to a head somewhat. A week after Sam’s first EPC…

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Adapting

And I don’t mean houses here, I mean ME. It’s been a week now since our…

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Adapting is good… or is it?

So, we had our OT visit for the disability facilities grant. And I will admit I hated…

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Grieving the loss of normality

I’ve struggled with this post for several days now. It’s very raw still…

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The heartbreak of not having a definitive diagnosis

Before reading on, I want you to look at this photo and tell me if it’s a sad…

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The healing power of animals

We love animals in our household… in fact, it really wouldn’t feel like…

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There are therapies… and then there is Snowdrop

Is it just me, or do you sometimes feel like your child collects medical professionals…

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What to get for the child who has everything

On 15th April my little miracle celebrates his 4th Birthday. 4 years. How on Earth…

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When did life get so complicated?! Cars, motability and general ramblings…

OK, I’ll agree that I seem to make a habit of taking on too much. I’ll…

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Of penny pinching and asking for help

When Sam was 2yrs old I went part-time at work and it was fab I loved having more…

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Changing gear

So far, March has been busy/chaotic/stressful… even more so than usual! After…

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Learning to Juggle, and not always keeping all the balls in the air!

My name is Carolyn and I have a confession – I’m a working mother to…

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How long?!

So. Sam, as I have mentioned before, is a tall little dude.  And is now far…

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Life, according to Sam

So, where do I begin? While writing this, one of my favourite pieces of music came…

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