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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Carolyn Voisey

Slightly bonkers mum to a superhero. I live in the Midlands with my best friend and soulmate Jonathan, our son Sam and a menagerie of animals. Our lives are chaotic but full of laughter and fun as we learn about life and love through the eyes of a medically complex child

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Special Needs

Special Needs Parenting: The Truth Hurts

​So this week I’ve had the unenviable task of keeping a detailed diary for…

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The Power of Communication

​We’ve had a very rough day. Little dude incredibly miserable, chesty, sounding…

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Starting School: A letter to my son

​Well, little one.  Who’d have thought four years ago that you’d…

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Special Needs Parenting: When things go wrong

As special needs families we are in an incredibly vulnerable position as we search…

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Special Needs Parenting: When you’re stopped in your tracks

I know I’m not alone when I say that there are moments when a simple comment…

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Life will find a way

After the chaos of Sam’s procedure being cancelled at the 11th hour last week…

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Special Needs Parenting: Things ain’t all bad

​A tricky week in our household has just been survived – little man hasn’t…

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Special Needs Parenting: I will not be sad today

I will not be sad today.

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Special Needs Parenting: Trusting someone else to care

​Big news today…for the first time I had to come into work this morning…

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What ifs, what onlys and the 10 things that make me happy!

​There is no getting away from the fact that being a carer is damn hard. …

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Special Needs Daily Battles

​When life is just, well, MEH.

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Making therapy fun!

​Sam has taught me many things in his 4 years so far. One of them is to have fun.

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Therapy Pets: Service Dogs

​​This month life has become considerably more chaotic with the arrival of a…

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Special Needs Fundraising: Those wonderful wish granters…

A year ago, I filled in an application to the Make a Wish charity, not really believing…

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Pick self up, dust self off, special needs style…

After having a bit of a pity party for one, I’ve now dragged myself off the…

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My Special Needs Wish List

It's been a funny week one way or another. Sam's doing brilliantly on a blended…

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The blended diet

For those who don’t have a super tubie like Sam in their lives, the blended…

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When it all goes to @$%£!

There are days when I feel like I could take on the world.  Today is not one…

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Epilepsy - The medication juggling act

In many ways, having a child with special needs is no different to having a typical…

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The case of the teleporting cat… and where has our crockery gone??!

A week ago saw the Big Move happen, Team Sam are now happily ensconced in our new…

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When time stops still for a moment

There are four words which, when said together, never cease to make me see red and…

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Hidden cost

One of the biggest irritations to me is why everything special needs is more expensive…

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In praise of the P-pod

Oh, how much do we love this piece of kit?!  For those who don’t know,…

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When family can’t or won’t help

We’ve been very lucky since Sam’s arrival - my parents have been incredibly…

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Pressure

I’m so scared of getting things wrong these days. Worrying about Sam’s…

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The joys of school transport

Really, how hard can it be to sort out school transport?!  Do other SEN families…

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That cringing moment when…

… you realise that you’ve forgotten an appointment. Again. Oh dear,…

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Together for short lives

When every moment counts, the constant fighting, medications, therapies and strain…

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Mothers, unite!

I can’t possibly be the only Mum who has noticed this; our children and families…

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Fear of Failing

Today things have all come to a head somewhat. A week after Sam’s first EPC…

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