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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Carolyn Voisey

Slightly bonkers mum to a superhero. I live in the Midlands with my best friend and soulmate Jonathan, our son Sam and a menagerie of animals. Our lives are chaotic but full of laughter and fun as we learn about life and love through the eyes of a medically complex child

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Special Needs

Grumpy… and thankful for it!

Today I am trying incredibly hard NOT to be a grump. On Friday I attended the funeral…

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Running on empty

I strongly suspect my blog posts this month will be even less structured than usual!…

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Hallelujah, a hoist!

Ladies and gentlemen, it has taken four years, one house move and two occupational…

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My garden, my sanctuary

It has to be said, the weather in the Midlands this summer has been..... changeable.…

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Waiting, anticipating…

Sam goes into hospital in a few days for video telemetry. For those unfamiliar with…

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Food, Special Needs

The wonderful benefits of blending

Since Sam had his PEG fitted a year ago, he has come a looong way.  From being…

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A problem shared…

There’s a very deep, special bond amongst those of us in the special needs…

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And thus the merry-go-round continues…

I despair of the NHS. I really, truly do. Not the Doctors and nurses but the Administration…

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The Simple Things

Despite the smallest Voisey having some pretty severe issues, there are certain activities…

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Food, Special Needs

The power of food… the wonders lurking in the spice cupboard

So, it has been a year now since Sam began to have real food blended and fed to him…

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World of Country Life visitor attraction

I will say this first off – it is not cheap to get in! When we went (May 2016)…

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Does having a disabled child make you a disabled family?

I’d never really thought about this until a few weeks ago, when my husband…

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Holiday parks… not as accessible as you’d think!

As previous family fund recipients, we decided to give Haven a try with Sam, while…

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Food, Special Needs

Holidaying… with a tubie

I am really quite excited… in a just a few weeks we’re off on our holidays!…

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EHCPs and Adaptations

After one of the busiest weeks I can remember, I am finally managing to catch a few…

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When the goalposts change

So last week we had an appointment that rather turned everything upside down……

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The Marvellous Scooot

Just before Christmas we decided to invest in a Scooot for the little man; he’s…

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Prognosis vs Reality

Today I read a heart-breaking plea from another Mum. Her child had just been diagnosed…

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When equipment arrives and emotions run high

So, after years of fighting and begging, a mobile hoist has arrived and I am at once…

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Raising kids with special needs: Get bitter or get better

​I’m often told that I have an amazing attitude towards Sam’s disabilities,…

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Raising kids with special needs: Forms, forms and more bloody forms

I am uttering a plea now to anyone who’s listening – please God, no more…

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Raising kids with special needs: MY birthday wish!

It’s an annual battle – what to get the child who already has masses…

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Special Needs Mums: Why we detest winter!

​When I was younger, I loved winter. I love all the fun things that go on –…

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Raising Kids with Special Needs: When you’re sleep deprived…

​This week is not going to be fun in any way shape or form.

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Special Needs Parenting: The Truth Hurts

​So this week I’ve had the unenviable task of keeping a detailed diary for…

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The Power of Communication

​We’ve had a very rough day. Little dude incredibly miserable, chesty, sounding…

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Starting School: A letter to my son

​Well, little one.  Who’d have thought four years ago that you’d…

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Special Needs Parenting: When things go wrong

As special needs families we are in an incredibly vulnerable position as we search…

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Special Needs Parenting: When you’re stopped in your tracks

I know I’m not alone when I say that there are moments when a simple comment…

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