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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Carolyn Voisey

Slightly bonkers mum to a superhero. I live in the Midlands with my best friend and soulmate Jonathan, our son Sam and a menagerie of animals. Our lives are chaotic but full of laughter and fun as we learn about life and love through the eyes of a medically complex child

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Special Needs

When there’s no room for the basics

I have a question for you; what do you do when you have an individual who uses a…

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Winter is Coming

I have a nasty feeling that winter chez Voisey isn’t going to be nice… 

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When a Seizure Doesn’t Look like a Seizure

It seems these days that every month has at least 3 different good causes vying for…

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Special Needs Families: When there’s no room for the basics

I have a question for you; what do you do when you have an individual who uses a…

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Feeling the Pressure

After something of a hiatus over summer it’s good to be back as a (relatively)…

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Invisible Disability, Invisible Child?

Hindsight is a wonderful thing isn’t it?  

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Special Needs Parents: Does he ever laugh?

It was an innocent enough question, asked by a little boy who I am incredibly fond…

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Special Needs Parenting: The trauma of change

And no, this time I’m not talking about the weather.

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Special Needs Parenting: Ambushed

My heart aches today. Not for any particular reason, it just does.

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Awards and Conflicting Emotions

And lo, we are in the summer term and it’s only a few more weeks until the…

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Changing Seasons

The way the UK weather is behaving you’d be forgiven for thinking we’ve…

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Just One Thing

I was asked the other day if there was a particular skill that Sam didn’t yet…

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I am Not a Fan of Holland

Firstly, let me add that I have never actually visited Holland however I am sure…

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6 Years

Six years ago today at 37 weeks pregnant I was in the antenatal clinic for my final…

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Walking a Knife Edge

Never sure how to start posts like this one, it always seems so trite. 

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What Really Matters

How do I explain to people who don’t understand that for all his issues, my…

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Being a Working Mum

Alternatively, In Praise of the Stay at Home Dad.

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5 Things I Would Like People to Know

As far as anyone knows we’re a nice, normal family… so stated the sign…

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The Great Clear Out

There is one thing I pretty much loathe doing.

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When Even the Specialists Don’t Know

Most days Sam’s status as a child who is undiagnosed just doesn’t bother…

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Woods and Trees

So, I may well have waxed lyrical about how it doesn’t actually matter to me…

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Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

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I would be Lost without mum: Special Needs Parenting

I am acutely aware that not everyone has a Mum prepared to drop everything to help,…

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Two Steps Forward, One Step Back

This week we got the news that the Council are happy with the plans for Sam’s…

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Lunch Date with a Tubie

In a rare twist of fate, on a day when I actually had a decent time for lunch Sam…

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Special Needs Parenting: Giving thanks to the monitor

There are some days when the tiredness still pulls me up short. 

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Special Needs Parenting: The newness of things

Today, meteorlogically at least, is the last day of winter… in order to make…

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Special Needs Parenting: Anticipation

There are days when I feel I can function pretty normally… and then there…

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Surgery Day

I’m remarkably calm, as I sit with J sipping far too hot coffee out of a lidded…

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Special Needs Parenting: The boy who defied predictions

My little human has never been one to listen to what the medical profession has to…

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