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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

Carolyn Voisey

Slightly bonkers mum to a superhero. I live in the Midlands with my best friend and soulmate Jonathan, our son Sam and a menagerie of animals. Our lives are chaotic but full of laughter and fun as we learn about life and love through the eyes of a medically complex child

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Special Needs

Undiagnosed but not Invisible

Undiagnosed children day is rapidly approaching... it also makes over 1 year since…

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Special Needs

I would be Lost without mum: Special Needs Parenting

I am acutely aware that not everyone has a Mum prepared to drop everything to help,…

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Special Needs

Two Steps Forward, One Step Back

This week we got the news that the Council are happy with the plans for Sam’s…

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Lunch Date with a Tubie

In a rare twist of fate, on a day when I actually had a decent time for lunch Sam…

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Special Needs

Special Needs Parenting: Giving thanks to the monitor

There are some days when the tiredness still pulls me up short. 

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Special Needs

Special Needs Parenting: The newness of things

Today, meteorlogically at least, is the last day of winter… in order to make…

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Special Needs Parenting: Anticipation

There are days when I feel I can function pretty normally… and then there…

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Surgery Day

I’m remarkably calm, as I sit with J sipping far too hot coffee out of a lidded…

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Special Needs Parenting: The boy who defied predictions

My little human has never been one to listen to what the medical profession has to…

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Exhaustion and the never-ending battle for a suitable home

Sometimes things just get a bit too much and it's all you can do to keep moving…

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Special Needs

Life, Interrupted

Here we are, once again sitting in a hospital bedroom. Waiting. Always waiting... 

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Special Needs

Raising kids with disabilities: Thank you Grandparents!

Honestly I don’t know why I started blogging, I’m utterly hopeless at…

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The Lanterns

After my father passed away on the 16th December, I wasn’t sure how to face…

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Toys toys and more toys!

So this year I have a problem. 

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Magic

This year, for the first time, Sam is very much aware that *something* is going on. 

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Windchimes

I’d planned on writing about the difficult in searching for Christmas presents…

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Is it Friday yet?

Currently we’re working our way through a new quagmire of chaos and paperwork;…

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Glorious Autumn

Ah, Autumn.. the season of mists and mellow fruitfulness.. and quite possibly my…

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The Worlds Most Expensive Mince Pie

In amongst the grind of daily life with a medical mystery (granted, a very handsome…

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When the smallest change makes the biggest difference

One of the most difficult, soul destroying, stressful parts of having a child with…

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To have another child… or not?

There is a topic that crops up frequently on the special needs groups and while it…

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Grumpy… and thankful for it!

Today I am trying incredibly hard NOT to be a grump. On Friday I attended the funeral…

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Running on empty

I strongly suspect my blog posts this month will be even less structured than usual!…

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Hallelujah, a hoist!

Ladies and gentlemen, it has taken four years, one house move and two occupational…

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My garden, my sanctuary

It has to be said, the weather in the Midlands this summer has been..... changeable.…

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Waiting, anticipating…

Sam goes into hospital in a few days for video telemetry. For those unfamiliar with…

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Food, Special Needs

The wonderful benefits of blending

Since Sam had his PEG fitted a year ago, he has come a looong way.  From being…

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A problem shared…

There’s a very deep, special bond amongst those of us in the special needs…

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And thus the merry-go-round continues…

I despair of the NHS. I really, truly do. Not the Doctors and nurses but the Administration…

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The Simple Things

Despite the smallest Voisey having some pretty severe issues, there are certain activities…

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