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Special Needs Bloggers

Meet our Firefly Community bloggers providing you with their unique, meaningful and insightful thought pieces

As Alex Grows Up

This is, primarily, a blog about our little boy, Alex. He has an undiagnosed genetic condition which has resulted in global developmental delay with a visual impairment. In reality what this means is that although he’ll be 4 in July, he’s non-verbal, he learnt to sit up properly only within the last 6 months and is now a whizz at spinning round on his bottom to reach things and grabs at anything in his reach – safe or not… He needs help with every single every day activity and sometimes his hand/ eye co-ordination is off. It’s bang on, however, should you offer him a chocolate biscuit… He’s a mystery, an enigma and utterly utterly gorgeous. He’s also cheeky. And funny. We've started this page for you to keep up to date with him, watch his progress and track our fundraising efforts.

@Asalexgrowsup http://asalexgrowsup.wordpress.com/

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Special Needs

Special Needs Parenting: Sleep you say…

Ask a parent of a child with additional needs: ‘Do they sleep well?’…

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My #barefootchallenge

No one likes a public toilet do they? I know this because when we find a nice one…

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Special Needs Parenting: Flash Forward

All any of us want for our children – I think – is that they grow up…

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Special Needs Inside Out

I very much imagine that – having seen ‘Inside Out’ over the summer…

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The things that upset you as a special needs parent

​Don’t ever feel like you can’t talk to me. Please don’t ever…

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Eating… the delayed development way

Food. What a conundrum for a parent of a child with additional needs. When we first…

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All about a bed

In the beginning there was sleep. Far too much of it as it turns out. At the time…

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Making Provisions

As my father will attest there was a point – when I was 6 or 7 – when…

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Undiagnosed Awareness Day

*waves* Hello? Helllllooooo? Over here! Life is full of Awareness Days. All trying…

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This much I’ve learned…

I don’t know how I do it either.

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A New Normal

Sitting in my house 4 years ago, staggered at the different turn my life had taken…my…

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Starting school - not so scary after all

One of the huge moments in any child’s life is the day you start school. 

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