Therapies. Specialist appointments. Countless trips to the pharmacy and hours sorting and administering meds. Researching holistic remedies and behavior modification. Surgeries. Orthotic equipment. Special diets.  

These things have become such an integral part of my life, as a parent of children with special needs. 

This new world has replaced the old world that I lived in. 

Life once entailed going to work, bringing home a steady paycheck, and spending “free time” with friends. Once, I went on dates with my wonderful husband regularly and we even spent a night away, from time to time. 

It’s hard to remember that world; that previous life. My children are now my world, and they are my life. I love them with every fiber of my being and I would have that no other way.

However, something happened recently that reminded me of who I used to be before this life….I found myself again.

Years overdue for a night out together, my husband and I ordered tickets to a concert on a whim. Our long-time  favorite band, Pearl Jam, was playing one hour from our home. 

We heard on the radio that they would be performing and without hesitation, we immediately purchased tickets. 

“On a whim” and “without hesitation” are words that we thought had vanished from our vocabularies. 

Our life is filled with routines, planning, and a reluctance to schedule date night in fear that events beyond our control will force us to have to cancel.  

Ordering tickets for a concert, two months in advance, traveling an hour from home, and staying out past midnight had become ideas unheard of!

Leaving home alone together in recent years had become so rare, it had become a special occasion to just grab a quick coffee together, by ourselves. That is just the way it is. 

When our date night arrived, we were like two ecstatic teenagers! 

Feeling the excitement as the lights went out and the reminiscent music started, I felt renewed. Seeing the band on stage, while my husband and I danced and sang along to all of our old favorite songs, I sensed the old me resurfacing. 

Hearing the familiar music from our youth, and feeling it loudly vibrate down into our souls, we were finding US again. 

For a moment in time…there were no meds, no therapies and no meltdowns. There was only the two of US, having our ultimate date night. 

While we rushed home after the amazing show ended and we couldn’t wait to kiss our babies goodnight, we made a vow to make time to just be US more often. 

When we listen to all those songs now, they have new meaning. They remind us of a simpler time, while simultaneously reinforcing the fact that the old version of US hasn’t disappeared. 

The old me is still in there somewhere, and in most ways, I’m better than I once was. I know now that finding ourselves again and reconnecting from time to time is imperative to stay afloat in this life.

One small piece of advice I offer to other parents and couples in our shoes... Do things for YOU. Do those things that make you deliriously happy. Go see that that bucket-list concert, have coffee, go for a long run, hit the gym, go on amazing dates with your spouse or partner. 

When you are like us and can’t always find the time for the things that feed your soul, sometimes you just have to MAKE the time!

Things you might like

Check out the Playpak

The portable activity kit. Fun therapy at home or on the move

Find out more

Other articles you might enjoy...


15 Ways to Spend Date Night by Special Needs Parents

Firefly asked Special Needs Parents: What makes a great Date Night?  Here…

7 Emotional Wonders of the Special Needs Parenting World

Too often we read articles about the lows of special needs parenting. The sadness,…

Special Needs

“I’ll Take Care of Her When You Get Too Old” - Raising Children with Disabilties

As parents, we all want to know that our kids will be fine someday without us. …

Survey icon

Public Opinion…

Have you received a grant to purchase equipment for your child?