From very early on in Zachariah’s life I started to learn that most things Zachariah is going to need, we are going to have to fight for them. 

I understood this and at first I accepted the challenge with the attitude that he is my son and of course I'll fight for him.

However this feeling has now changed dramatically and I’m now truly hurt that I have to fight in the first place. 

It’s painful to accept the fact that Zachariah cannot just be changed wherever we go. 

We cannot just pick a random restaurant to eat at and I cannot just wander into my local town without immense planning.

Last month I did a piece on accessibility within parks and in that I said that we need to share our knowledge and express our needs in order to help others understand so they can help make our lives more accessible.

I try so hard to do this, but reality is it sometimes it gets on top of me and I feel exhausted from the constant reminders I'm having to send to people.

There’s only so many times we can tell someone that our child needs a bench and hoist instead of a large toilet room with a handle before you feel utterly outcast, disrespected and quite frankly ignored.

There's a mum I feel overwhelmingly inspired by who has helped me through these feelings, whom through her constant battle and her passion to see changes for her and her son,I see that we just have to keep fighting as no matter how hurt we feel, it is all for our children, is that not worth it? Of course it is!

But this fighting takes its toll on us all, we become defeated, exhausted and sometimes it is better to just stay at home where things are so much easier!

There’s no planning, no checking if there's an accessible toilet or if they blend foods so your son can eat there and there's no way you can feel unequal, as that is the hardest part of it all.

Why are we having to fight so hard with campaigning?

Why are we having to improvise by using the boots of our cars to change our children?

I cannot accept it anymore, I can’t keep saying it’s just the way it is, because quite frankly it's not the way it should be.

I'm just hoping that I can revive my passion and get my battle back on so I can keep shouting for my sons basic rights, as at the moment I’m struggling and I know many of you are too.

We are all in this together and I just want to say well done to you all and tell you how amazing you all are. Let’s kick some butt!

I love my Son for teaching me how to fight!

Rochelle, Mummy to Zachariah xx

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