Parents whose child has a disability get a lot of advice, most of it is well-intended but not always well-informed.

So whose advice can you trust when it comes to expectations, coping mechanisms, inclusion and family participation? We asked the experts, some of our favourite parents and bloggers, "What's the best advice you've ever heard on raising a child with a disability?"

And they responded with some golden nuggets of advice that got them through hard times and helped them along the journey.

The advice here isn’t gathered in any particular order, they are just the experiences of some fantastic parents that face some of the challenges you might recognise. We hope these make a difference to you when you need them most.

  • “Look at what he’s doing, not at his medical records.”
    Ellen Seidman, Max’s mum (


  • “Enjoy them for the child they are, don’t see them as a project.”
    Hayley Goleniowska, Natty’s Mum (  


  • “Take it one day at a time and try not to think too far into the future.  Enjoy the here and now with your child.”
    Dawn Hamilton, Emerson’s mum (


  • The best advice I've heard is simply never give up hope.  Our motto in our home remains Everyday holds the possibility of a miracle."
    Stacy Warden, Noah’s mum (


  • “You never know how strong you are until being strong is the only option.”
    Hayley Young, Henry’s mum


  • “Throw out the baby books. Stop following the milestones. Your baby will have milestones or 'inchstones' in his own time. Every child is different. Don't compare yours to another.”
    Kara Melissa Sharp, Seb’s mum (

And now it’s your turn to share the tips and advice that mattered most to you…

What’s the best advice you’ve ever heard on raising a child with a disability?

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