I always want to see the good in people; irritatingly, I have often been disappointed.
People who push in front of my boy as if he wasn’t there, or who ignore him and talk over his head make me see red.
As for those selfish individuals who park in a blue badge space when not entitled to do so, I firmly believe there is a special place in Hell for them.
But then there’s the other people – the ones who have never met us, who none the less want to help in some way.
We’ve had people donate to fundraising events, others who’ve sent gifts to Sam together with cards just because they were touched by his story and wanted to let a little boy with horrendous seizures know that someone else was thinking about him.
Friends of friends have stepped in to support us and Sam when we’ve needed it the most, but also when we’re actually having a good run of things, and that is just as critical.
Being a SN parent isn’t just hard, it’s lonely. I’m lucky – I can still work because Sam’s Dad quit work two years ago to be his full-time carer so I could continue working.
It means I get out of the house, have company and can focus on something other than special needs, therapies, equipment, funding... the list goes on.
Close friends see through that mask, and know that asking if everything’s ok will likely result in not very much. But a coffee and chat will definitely help.
When I was younger my Nan told me to smile at people when out and about. Doesn’t matter if you’re just out for a walk, off shopping or out with your family.
I still do it, and almost 100% of the time they smile back (possibly wondering “who is this slightly mad, frenetic looking woman with frizzy hair?!”).
The portable activity kit. Fun therapy at home or on the moveFind out more