Raising a disabled child is very expensive.
I was admiring someone’s lightweight wheelchair the other day and was shocked to hear it set him back £4000!
I feel very lucky that we have the NHS here in England. We are also lucky to be able to get financial help.
The frustrating thing is it is quite hard to find out what’s out there and you may be surprised on what help you could be missing out on – so here is everything we have found out our daughter is entitled to, none of them are means tested.
There may very well be things we have don’t know about out there!
Any child that needs looking after more than others their age or who have difficulty walking is entitled to DLA. It is between £21.55 and £138.05 per week. It is made up of a care component and a mobility component.
If a child is receiving the high level of mobility component when they turn 3, you can use this money towards leasing a car suitable for their wheelchair or special needs.
The tax, breakdown cover, repairs and insurance is covered on this vehicle and so you only pay for fuel.
Carers allowance is available if you care for someone receiving DLA for more the 35 hours a week, you can get it for caring for your own child and is £61.35 a week.
If you have a house which you purchased because you need the extra room i.e. for storing equipment or because you needed a downstairs bathroom or you have extra space to get a wheelchair around then you may qualify for a Council Tax Reduction.
The house needs to be the main home for at least one disabled person and this can be a child.
You normally have to fill out a form for this to apply.
The child’s OT is most likely to get this arranged for you if needed – It’s an extremely slow and complicated process but it is definitely worth it.
I think you have to sign an agreement to say you will stay in the house for at least 5 years after the work is completed.
Over 90% of cinemas in the UK accept this card and it can be applied for online.
They will fund your child a certain amount of money over the year to do something so that you can have a break.
You can use the money to pay for an out of school club or a childminder but can also use the money towards an activity.
For example, Bella uses hers for one-to-one swimming lessons.
For example, we use it at theme parks or places that offer a free carer because it has Bella’s photo on it we have a proof of disability with us.
That’s all the money help we have found so far, I am sure there is probably more out there but finding it is not easy – I hope that someone reading this has found something new which means they can worry a little less and enjoy Christmas a little more!
Have you ever flown with your disabled child?