When I was pregnant with Oliver, I remember being at by OBGYN's office setting up my little payment plan which covered the out of pocket costs for delivery.

It seemed like such a minimal amount, from what I use to see working in the medical field.

I was sure to thank my father that day for awesome insurance coverage. 

Once we knew Oliver might come early, partially because I was on bed rest from contracting at 24 weeks gestation, the social worker advised me to try and apply for medicaid.

She explained daily stays in the NICU would rack no less than $5,000!

Since grandchildren were not covered on my father's insurance, and I was not working due to being stuck in the hospital, I was approved for his medicaid.

I never had problems with them, since qualifying was mainly based on income and such.

Now that Oliver is a year old, and we are starting to look into equipment for him, things are getting difficult.

When we had discharged, our social worker had also informed me of social security for disability.

This was really a taboo subject for me at the time.

I did not quite understand at the time, what amount of money can slowly acquire from extra MRI's here and there, or for buying that very first wheelchair.

I never felt that I was in need of the extra money meant to help out specifically for these things.

I also was fighting that word, disability.

I saw my son as able to conquer anything he wanted, and with this word people might not think the same.

I felt angry that in order to get the help I needed, I had to accept the word.

Reluctantly, I applied anyways.

Here I am, a year later, fighting to get my son the same help I was hesitant to receive.

Not one parent, that I have met, has ever gone through this assistance whether it be medicaid, social security or anything else offered in their area and not had a problem.

We got our first denial letter, stating that Oliver did not have any disability under their requirements.

So I went over the requirements they had listed.

A disability that would last over a year of the child's life, that impairs their daily life in any way, and so on.

Although he was only 4 months at the time of applying, he met every single one.

So we appealed.

Then we received our second denial letter, stating that although he does have a disability, is does not seem to affect his daily life.

I must have read this a thousand times, holding back the rage boiling inside of me.

Does not affect his daily life??

My son has no movement nor sensation from his knees and below.

These people who claimed it doesn't affect his daily life are not the ones bandaging his toes because he bit the skin off again and did not feel a thing. 
 

They are not the ones in therapy working hard to get him to build upper body strength to help use a wheelchair one day.

Which brings me to our second bump in this road.

We have been denied with medicaid for a stander, to help Oliver start bearing weight on his legs.

Their reason? 
 

I am still waiting for that lovely letter explaining why they think my son does not need one.

I am not here to blog and complain about the difficulties we may face with these systems, but rather encourage you all to keep fighting for your child's rights!

We are still in the process of appealing now for a hearing, and I will continue to for Oliver.

Money is only temporary, but giving Oliver the ability to branch out individually and explore his world is priceless.

For this, I fight!

 

More like this please...

 

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