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It’s Friday night, and I should be excited that we’ve made it to the weekend. 

We have trudged through doctor’s appointments, daily therapy appointments, coordinated durable medical equipment appointments, dealt with over a hundred emails about our child’s government services, medical supply orders, and sought out support special needs support groups to keep us going through the entire week.  

Saturday and Sunday should be a day of rest.  But they’re not.

Before you know it you’re scheduling all the other things you can’t get to during the week, like a veterinary appointments, a trip to the grocery store, then to Target to fetch suppositories for your child, and then to the Home Depot because you need to build a disabled ramp, to working on therapy activities that all the weekly therapists have given you as homework assignments for your child.  

Then you forget that you’re out of the only pudding your child will eat so you drop everything on Sunday afternoon in between five loads of laundry to rush out to yet another store to grab and purchase more.

The lawn needs mowed, the flowers need watered. 

Your child needs to practice learning to drive with a joystick in a power wheelchair.

You try to squeeze in a quick personal blog about the week’s events but then realize you have to start dinner in less than a half hour. 

You put that idea on the back burner, only to remember that you still have to fill out appeal paperwork for your child’s most recent Medicaid denial.

You’re so overwhelmed that you are surprised you can even still remember your own name. 

Your body aches all over as it’s begging you to slow down and rest.

But you know that you have to keep going full steam ahead. 

And you think to yourself; why can’t there be an 8th day in the week because no super special needs parent can possibly accomplish all that must be done.

Here is the conclusion I’ve come to:

We’re only human. We are trying to accomplish often the impossible in a very short amount of time. 

We are juggling too many things all at once afraid to drop the ball on anything. 

In the process we’re failing ourselves, our health and often times our sanity. 

If we don’t find a way to slow down it will take a tremendous toll on being the strongest form of ourselves for our child with special needs. 

How do we find ways of slowing down and fitting it all in? 

We have to learn to let go and live.  And I mean that.  And I’m going to practice it.  And so you can you. 

This means ignoring some emails and playing in the Upsee instead. 

It means disconnecting from the computer and the doom and gloom that we continually Google about our child’s diagnosis. 

It means that maybe you decide that therapy isn’t necessary every single day of the week and cut back to two or three times of the most beneficial therapies that you think are working.

It means sending up the SOS and asking your spouse, relative or family friend to go fetch the suppositories, or pudding. 

It means deciding that you owe yourself a weekend nap. Yes an hour. 

One hour, which means the laundry can wait an entire hour until you wake up. 

Rethink a simple weekend menu – tell the family it’s either hot dogs or tuna sandwiches because you are not going to dedicate two hours in the kitchen slaving over dinner. 

It means giving yourself permission to step back and just breathe. 

Just breathe for a second and re-group. 

There will never be an 8th day. 

Make it so that you don’t feel like you need one. 

Little changes can lead to a big relief in the stress we’re feeling as over-booked special needs parents. 

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