If you are the parent of a child with special needs, you can quite possibly relate to the overwhelming task of keeping track of diet, meds, changes in behavior, and what feels like everything else under the sun on a day-to-day basis.
Why, you might ask?
Because the ONE THING you forget to write down or make note of is going to be the first thing the doctor asks you about at your next appointment.
Have you ever had that sinking feeling sitting in the doctor’s office when they ask you that one obscure question, and you feel like an idiot while at the same time knowing nobody knows your child better than you?
Here are a few things I’ve implemented in our daily routine to help keep track of our son’s every move important daily details.
It has been helpful in both making me feel more organized and knowing all of those little details are at my fingertips just in case the doctor asks.
And if she doesn’t, I may tell her allllll about it anyway because I’m organized now, and can tell her the last time my son had a bowel movement, what date we started increasing his dose of anti-seizure meds, and what his weight was at his 18 month checkup if she can give me two minutes to look it up!
The easiest way I’ve found to keep track of our son’s ten daily medications is with a good old dry erase board hanging inside the cupboard door.
On the left side of the board I have listed the name of each medication he receives, starting with the one he gets just one dose of daily, then the medications he receives twice daily, followed by the ones that are three times a day.
It takes me ten seconds every morning to draw dashes next to each to indicate the number of doses he will get throughout the day.
Each time I give one of the medications I erase a dash.
This way I can see to it that our son gets all doses by the end of the day.
I also keep a note on my phone that lists all medications and their dosage, as well as a picture of the medication labels.
If a nurse should ask what the concentration or dosage of a certain medication is and you aren’t sure (because who can really keep track of all of that in their head?) you can refer to the picture of the label.
This will also tell you if refills are necessary and how long until the refills run out.
A simple three ring binder houses all of our paper copies of medical records and summaries.
It is divided by doctor/specialist to make it easy to find information from each.
Someday when I morph into Superwoman have the time I’ll put a pretty cover in that binder.
On a daily basis I keep a running note on my iPhone of the date, what time our son ate, what he ate, how many calories he ate, when he had seizure activity, when he had a bowel movement, and his total caloric intake for the day.
I also make note next to the date if a new medication or new dosage of a medication was started.
Another statistic I keep track of next to the date is height/weight from doctor’s appointments.
It sounds like a great deal of complicated information, but is really quite simple after getting into the routine of tracking it all.
Here’s an example of what a daily entry would look like:
4/14 (21 lbs. 13 oz., 33 inches) (increased Lamictal to 50 mg)
8:15 5 oz bottle (150 calories)
10:00 fruit oatmeal (130 calories)
1:30 4 oz Boost drink (120 calories)
5:45 sweet potato turkey w/butter (200)
7:30 pear raspberry (110 calories)
9:45 4 oz bottle (120)
…830 calories total
What are your tips for keeping track?
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