As a parent all you want is for your child to be happy and healthy.
In fact a common response when you ask a pregnant person whether they would like a girl or a boy is; ‘As long as the baby is happy and healthy then I don’t mind’.
When we found out that our baby had a disability and wasn’t going to have the life we originally mapped out for her, I crumbled.
On the outside I was strong, I would tell people she was special, that as long as she was smiling, I am smiling. Then I would scream and cry when I got behind closed doors.
It has taken a year for me to realise that yes, I would have preferred my daughter to have a life that isn’t full of appointments and uncertainty of her future. Yet I wouldn’t change my daughter at all.
My daughter is full of determination, she is full of smiles and she loves cuddles.
My daughter does get tired a lot quicker than most children, however, when she is awake she is making the most of every minute she can move, she is not lazy.
My daughter can play with her siblings even if it is slightly different to the way I had imagined.
My daughter is still loved by her family and friends.
I would still fight for my daughter until my last breath, which I would do for all my other children.
I never envisaged my family to be how it is. I wouldn’t change it for the world.
Each of my children teaches me new things about myself every day. My baby is teaching me how strong I am, she is teaching me determination, and she is teaching me patience.
This is the only thing I wish I could change about her.
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