In the first of our ‘Get to know the Special Needs Bloggers’ series, we have an interview with Stacy Warden. Stacy blogs at Noah’s Miracle, she is also the name behind many of the most popular Special Needs pages on Facebook including a Very Special Needs Resource.
What’s the best thing about being a Special Needs blogger?
The best thing about being a Special Needs Blogger is offering others hope an inspiration, through writing about your own experiences and journey. It can be the best way of comforting another special needs family and can give a person the feeling you are reaching out to them with a written word to offer them a hug. It serves as a gentle reminder that none of us are truly alone, because somewhere out there someone is feeling exactly how you are and is experiencing the same kind of challenges.
What are your hopes and dreams for the future?
My hopes and dreams for the future are that I can leave this world a better place for those with special needs. That I can promote and inspire positive changes. That no parent will ever have to feel the pain of a world that doesn’t accept their child with special needs. And that equal opportunities and kindness will be abundant for those with disabilities.
If there was a movie about your life, who would play you and why?
If there was a movie about my life I would pick Jennifer Lawrence. I think she has the ability to convey all the raw emotions that come along with the special needs journey. She is tremendously strong, brave, and highly determined yet has a beautiful delicate balance of finding humor in life’s difficult moments. She could portray a special needs parent that never backs down from a challenge, and gets up time and time again to fight the good fight, no matter how stacked the odds are against her.
What do you do to relax?
I love Yoga and light exercise to clear my mind. Sometimes when that isn’t possible, I’ll gravitate towards a quiet spot where I can reflect and recharge myself for the next day. I also love to sometimes curl up with a cup of tea, a warm blanket and an emotional movie.
What’s your favourite food?
This is a hard question, I tend to love everything (except the combination of liver and onions). I have a soft spot for simple things like a croissant, and a good cup of coffee. But occasionally I love those sweet moments that life offers and adore anything that has berries in it. I still dream of this amazing Pavlova dessert every now and again.
If you could go anywhere in the world with Noah where would it be?
Likely back to Northern Ireland or some place in the UK. I have never felt such unconditional acceptance of a child with a disability like I did when we traveled internationally. Now that we’ve gotten our feet wet and realized traveling with Noah is possible, someday I’d like to take him to Hawaii to put his feet in the sand.
What’s been your highlight and low point of 2014?
The highlight of 2014 was traveling to Northern Ireland to launch the Upsee. It was an amazing trip that literally changed us as a family. We never imagined we’d ever travel more than 40 miles from home in any direction with a child who had a severe disability. It taught us what was truly possible. We also met so many incredible families that mean so much to us and we formed life-long friendships. It gave me the courage to jump out of our “comfort zone” and into a new place of growth for us as a special needs family. The low point was facing more Medicaid denials for Noah’s needs. There is nothing harder than struggling to obtain things your child needs for daily living and his quality of life. It continuously feels like a heartbreaking blow time and time again.
What’s top of your most wanted list for Noah?
My most wanted list for Noah is that someday he’s gifted with the ability to walk and talk. That he remains this beautiful happy spirit given all the challenges he faces. That he never feels lesser, that he always knows the tremendous value he has in this world. That he is always loved, and that he gets to grow up and even get married and have a family. I want for him to experience all of the beautiful things life has to offer. And I want to be able to find a way to provide for him all the equipment and therapy he needs along the way to be able to reach his own personal growth and development.
If you’d like to be Firefly Garden Special Needs Blogger, get in touch by emailing [email protected]
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