Anna Baird wanted to share her story about her daughter's life with Rett Syndrome and the progess they have made using the Upsee.

Here's Anna...

Elianna is a bright-eyed, 3 year old little girl who has Rett Syndrome (RS).

Her motor planning is severely impaired and low muscle tone makes it extremely challenging to bear weight.

Our once very active family now finds it difficult to engage in activities in which Elianna can join.

Rett Syndrome (RS) is a neurological disorder that causes a regression, usually between 9-18 months of age.

It has affected everything she does and has taken away her ability to walk.

At one point she could no longer sit upright without support.

She has also lost all purposeful use of her hands, has breathing abnormalities, dystonia, apraxia, anxiety, and is non-verbal.

As long as Elianna has RS and until a cure is found; most of these debilitating symptoms will not go away, not even with daily extensive therapy.

mobility children

Our goal is to keep her strong, take one day at a time, and never give up on her or underestimate her determination.

Therapy has consisted of Physical, Occupational, and Speech.

We've visited licensed centers and received in-home therapy visits.

We were loaned a vertical stander which we use as much as we can, her tolerance of this therapeutic method can vary from day to day.

Elianna has also had Hippo-therapy which has strengthened her core.

therapy for children with rett syndrome

Although our daughter continues to increase her overall strength, she was still excluded from sibling activities due to the limitations caused by RS.

Then we tried the Upsee.

It has been great!!

Obstacles that stopped her before, have been overcome with her ability to stand close to the action on the same level as her peers.

Her baby sister never even realized that Elianna was taller than her and the look on her face was priceless!

Apraxia prevents Elianna from performing tasks that she understands and knows how to do.

The pathways in her brain don't fire a clean direct shot like the typical brain, so her timing is inconsistent with a delayed response.

therapy for children with rett syndrome

In the Upsee she is positioned and ready to stand, so when her brain makes that connection she doesn't have to count on us to read her mind and know when to assist.

The design of the Upsee also allows me to perform hand-over-hand activities with her, without struggling to hold her upright at the same time.

Walking in the Upsee is keeping Elianna's neural pathways alive and active.

We have seen a remarkable improvement in Elianna since we began using the Upsee.

huge thanks to Anna and Elianna for sharing their story. If you would like to tell yours, please contact [email protected]

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