I was supposed to be on a flight this morning to America.
A trip to visit my best friend and family and also attend a wedding with my husband in beautiful Whistler. A little getaway from the kids…or not.
Both of us parents being away (and a whole-day’s-travelling- distance away at that) was just going to be too much.
Did I mention that I HATE seizures?! I actually detest them.
They are one of the most terrible things in this world in my mind. So much unknown. So many questions.
What was the trigger? Why now? Why my little girl?
Elizabeth started having grand-mal seizures at just six months of age, and she was on medication until she was seven years old.
All her testing always came back completely normal- so we had high hopes she would someday outgrow her ‘childhood epilepsy of unknown origin’.
She was weaned off the meds, and went for a while with only one break-through seizure last year.
No known trigger or cause that we can pin down.
We feel helpless. On high alert.
She’s fallen twice and banged her face pretty bad at the onset of a seizure. The last three have been in her sleep and she’s bitten her tongue.
Life to some degree has come to a halt. I’ve had to put some things on the back-burner and focus on being a mom and carer to my girls.
Travelling can wait. My nursing shifts can wait. Classes and massages for my essential oils can wait. Meeting friends for dinner and any leisure plans can wait.
Family comes first.
You will need to make LOTS of sacrifices. You will need to improvise, and revise your plans, often!
Life doesn’t always work out the way you either want it to, or thought it would.
The mobility device changing people’s lives worldwideFind out more