Dear World, I want to talk to you about my son, Danny.
You have seen us around.
We go pretty much everywhere and do just about everything.
Danny keeps a pretty full dance card and likes to be on the go.
Mostly, you are so kind. You smile as we pass, ask if you can hold open doors, and have gone out of your way to help.
We are so grateful.
It would be hard not to respond to Danny. Danny is a smiley guy with a mop of red hair.
He has the shy smile routine perfected. He works his dimples and sheepish grin.
He has a sense of humor and laughs when other people do.
Danny has a radiant spirit. He is smart. He is funny. He is passionate.
This boy eats waffles with peanut butter and agave nectar every morning for breakfast, and he cries when it is over. Every day.
This is how much he loves it. He experiences things fully.
He has a top five favorite places in the world, favorite animals and animal habitats, and will readily share that he never wants to have a baby brother or sister.
He is a full human being. He has clear preferences, wants to make choices, and is confidant.
While he will express frustration with his body occasionally, he does not ruminate on his limitations.
He will just look for another way to make it work.
We have never expected him to be perennially cheerful through adversity, but he usually is.
World, I humbly ask you this. Please help me keep him this way.
Engage him, include him, and love him for exactly who he is.
Please treat him as a whole person, not marginalized by his physical and communication abilities.
Remind me that he does not have to be the ever-cheerful CP warrior, that he is allowed to be moody and grumpy, and that he is going to have to make his own way.
Be there for him when he needs it, but don’t do it for him.
He is cute and he will try to trick you into doing things for him.
World, I know this is a big ask, but I cannot do this alone.
He loves and needs you all too much.
I think you will find that you need him a little bit, too.
Thank you for helping me raise this boy.
Thank you for caring about this child.
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