So New Year and all the new year resolutions that come with it. This year I’ve decided to not do any specific fundraising for David (I feel my friends need a year off from being tortured to delve deep!) But that doesn’t mean I won’t be doing anything!
One thing that has struck me about being a having a child with special needs - there’s always a huge shopping list of things that they need. (You’re probably thinking - but sure that’s the same for every child). And you’re right, every parent wants their child to have everything he or she needs. But on most occasions there’s a big difference between want and need. John wants the latest lego set, he wants the latest game, but he really doesn’t need them. David doesn’t want anything but he needs the latest technology to help him communicate, he needs an all terrain buggy to enable him to enjoy the activities that my friend’s family enjoy.
David and his family need a nice garden. And yes I know every family needs a nice garden - but this family more than others.
David can really struggle with unfamiliar environments, he doesn’t always enjoy a family day out and you see him at his best when he’s at home surrounded by the toys he knows. But, he loves swings, he loves wind chimes, he loves the sun.
I can’t guarantee the sun but I hope I can get him a beautiful sensory garden that he and his family will love. It’ll also be great for us when we visit - I know my kids will love it too. I have made myself a promise to apply to every scheme/programme going to get David the sensory garden the budget for his extension couldn’t stretch too.
I have never done anything like this but appear to be winning every daft competition on twitter so hoping I am on a winning streak! Just need to make a start and get a bit imaginative. I am aware lots of non understanding folk may see this as a waste of time and money however even the recent headlines about a certain well known brick attraction make it all very obvious that ‘fun time’ for children with special needs is never easy. Common sense appears to fail on an epic scale for the paper shufflers sitting in their cosy offices (most likely with no disability access!)
It really makes you question who they involve in the decision making process… Did they ask the young couple with no kids would like to call in on a weekend away? Did they ask the elderly couple who maybe have memories of being there with their kids and want to spend an afternoon reminiscing? It hit the headlines when a disabled person was refused entry…great to get the exposure and highlight how decisions with no exceptions are ridiculous.
I can only hope that future decisions banning certain categories of the population from any place are kept where they belong…the history books. In the meantime, I’ll be applying to every grant I can to get David the sensory garden he deserves. I’ll keep you posted…
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